Search This Blog

FMS eNews 08/03/14

Families can be a great support.  I hope yours are for you.  I am very fortunate in mine.  Some of them I live with.  Last weekend my son visited us. This weekend, my sister and her husband.  So there has been much catching up and re-bonding.  It is great when we get together.  I think that meeting up with family and friends can be a real tonic.  Better than the bottled kind!
<><><><><><><><><><><><><><><><><><><><><><><><>

WORDz for the WEEK

 158.  Some days you're the dog, and some you're the hydrant.
<><><><><><><><><><><><><><><><><><><><><><><><>


From Adrienne Dellwo
Adrienne Dellwo
A lot of people have asked me about tooth and mouth problems in FMS and ME/CFS. This is one of those issues with sparse research but plenty of anecdotal evidence. I've summed up what we know, below.
Also this week, why sleep problems may lead to fibromyalgia, and how to protect your private health information online - and why you really need to!
Down in Featured Articles, you can learn all about some of our common overlapping conditions.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/30530ba5160001237e002608.htm
<><><><><><><><><><><><><><><><><><><><><><><><>

Physical Side Effects of Oversleeping

 When it comes to sleep, can you have too much of a good thing? It's true a good night's sleep is essential for health. But oversleeping has been linked to a host of medical problems, including diabetes, heart disease, and increased risk of death.

 http://www.webmd.com/sleep-disorders/guide/physical-side-effects-oversleeping
<><><><><><><><><>

Experience WebMD on the Go Via Your Smartphone or Tablet
WebMD's Mobile Site
WebMD.com has been optimized for your smartphone! Now it's easier than ever to access trusted health and wellness information anytime, anywhere.
WebMD's mobile web site makes it easy for you to browse slide shows, read articles, and find the answers to your health and wellness questions -- and that's not all! Check out mobile-only tools like Local Health Forecasts that provide you with the severity of pollen, the harshness of UV rays, and more -- all based on your location!
To access the mobile site, simply go to WebMD on your smartphone.

 http://www.webmd.com/mobile?icd=ban_hse_wbmd_300x250_mobapp_g
<><><><><><><><><>

Fibromyalgia Medications

 There are many different medications used to treat fibromyalgia symptoms, including pain medicines, sleeping pills, and antidepressants.  Some fibromyalgia medicines help ease pain. Others boost mood and improve sleep. Working with your doctor will help you find the right fibromyalgia medication to add to your treatment regimen. That way, you can manage your symptoms effectively.

 http://www.webmd.com/fibromyalgia/guide/fibromyalgia-treatment-medications-that-can-and-cant-help

<><><><><><><><><><><><><><><><><><><><><><><><>


 Clothes for Charity

 Plese read the message from FMA UK.  Can you help?

 https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FMAUK_Clothes.docx
<><><><><><><><><>

 FMA UK requests support for BHF Petition re prescription charges for those with Long-term Conditions

 We’re expecting the Government to announce a further increase in the price of prescriptions in England any day now. That’s why FMA UK, as a member of the Prescription Charges Coalition, is launching an online petition, calling on the Government to end unfair, outdated and arbitrary prescription charges for everyone with a long-term condition. The petition, hosted by the British Heart Foundation is easy to fill in. Just click here to add your support and please forward to family, friends and colleagues too.

http://campaigning.bhf.org.uk/ea-action/action?ea.client.id=57&ea.campaign.id=26016

 (If you didn't sign the petition last week please do so now.)
Another suggestion is for people to write to their local newspapers.  MPs read their local newspapers, so this would be another great way to raise political awareness.  
<><><><><><><><><><><><><><><><><><><><><><><><>



 YOU WON'T BELIEVE WHAT THEY'RE PLANNING FOR YOUR HOSPITAL...

 Already 150,000 of us have signed our names to the petition against the hospital closure clause. Now we need to make sure that everywhere they turn, Cameron and Clegg see that the public outrage about the hospital closure clause. Please watch and share the video now!

 https://secure.38degrees.org.uk/page/content/plans-for-your-hospital/

 and sign the petition
https://secure.38degrees.org.uk/page/s/cameron-and-clegg-hands-off-our-hospitals#petition
<><><><><><><><><><><><><><><><><><><><><><><><>


Spring is Here - Time to Get Moving in West Sussex

 http://us2.campaign-archive1.com/?u=75076062ba40962e2e364d5f4&id=ace265b870&e=751f85837c
<><><><><><><><><><><><><><><><><><><><><><><><>


Girls Night In

Even more dependable than alcohol for a good time.
We know this as we have over 3000 ladies who've been to one!
The perfect way to spoil any woman is to treat her to some well deserved pampering.
Whether it's your mum, your partner or the mother of your children.
Every woman likes to catch up with the girls, have a good old gossip, eat delicious food and have the added bonus of an indulgent treatment.
Look no further, I have the perfect solution.


<><><><><><><><><><><><><><><><><><><><><><><><>


Stress By Any Other Name: Inflammation, ‘Stress’ and Chronic Fatigue and Fibromalygia: An Inquiry
One of the most puzzling aspects of my Chronic Fatigue Syndrome/Fibromyaglia has been my body’s unusual sensitivity to stress. Oddly, it’s not the big stressful events,  it’s the smaller, day to day stuff that’s been so confronting. It’s that roller coaster ride of symptoms that can sometimes flare up with the slightest nudge.  It’s those fluey symptoms that show up particularly when I’m exhausted and feeling down.

 Read more:  http://www.cortjohnson.org/blog/2014/03/01/stress-any-other-name-inflammation-chronic-fatigue-fibromyalgia/
<><><><><><><><><>

 Shape Shifting Pain: How Chronic Pain Turns the Brain More ‘Emotional’ 
Recently we saw that some people appear to be sitting ducks for chronic pain.  Their brains have apparently reached a state, unbeknownst to them, where all that’s needed for a chronic pain state to emerge is a triggering event such as an injury. That triggering even starts a process which changes both the grey matter (neurons) and the connections between different parts of their brain.

 Read more: http://www.cortjohnson.org/blog/2014/03/04/shape-shifting-pain-brain-becomes-emotional-chronic-pain/

<><><><><><><><><>

Turning Point: Pregnancy and Chronic Fatigue Syndrome – Four Mothers Who’ve Been Through It Talk 

 “Chronic Fatigue Syndrome…..has made me a better mother when it comes to nurturing and loving and …supporting” ME/CFS mother Pregnancy. Talk about a major decision. It takes boldness to have a child when you have a chronic illness life ME/CFS and doing so raises major questions.

 Read more: http://www.cortjohnson.org/blog/2014/03/02/pregnancy-chronic-fatigue-syndrome-four-mothers-talk-offer/
<><><><><><><><><><><><><><><><><><><><><><><><>

Brighton Research Project

 "We are final year Physiotherapy students at the University of Brighton and are current carrying out a research project on people with Fibromyalgia. 
The title of our reseach project is:-
'A new diagnosis of Fibromyalgia: A qualitative exploration of quality of life​'
We are looking to recruit participants who have been diagnosed with Fibromyalgia within the last 12 months and who would be willing to participate in an interview with us, discussing the impact that receiving the diagnosis has on their quality of life. 
We would be very grateful if you could promote our study . .  and with your consent we will provide information sheets and consent forms as appropriate. 
Many Thanks
Kind Regards
Greg Booth and Chloe Fletcher​​"
Contact G.Booth3@uni.brighton.ac.uk and/or C.Fletcher3@uni.brighton.ac.uk if you qualify and would like to participate.
<><><><><><><><><><><><><><><><><><><><><><><><>


Our newsletter this week is packed with an enormous amount of value and I encourage you to spend some time and read each section. Even if the material does not directly pertain to your situation, please consider the other people in your life.

http://www.depkewellness.com/GlenDepke/Pages/Newsletters/March42014/index.cfm?SAVersion=401
<><><><><><><><><><><><><><><><><><><><><><><><>


 By Cathy Wong

 Healing with Tibetan Medicine
http://altmedicine.about.com/od/treatmentsremedies/fl/Tibetan-Medicine.htm?nl=1

 A Chinese Remedy for Aches and Pains - Juan Bi Tang
http://altmedicine.about.com/od/chinesemedicinetcm/fl/Juan-Bi-Tang.htm?nl=1

 Recipe for Green Juice
http://altmedicine.about.com/od/Juice/r/Green-Juice-Recipe.htm?nl=1

 Benefits of Indian Ginseng - Ashwagandha
http://altmedicine.about.com/od/herbsupplementguide/a/ashwagandha_benefits.htm?nl=1
<><><><><><><><><><><><><><><><><><><><><><><><>


 Drugs for Fibromyalgia: How Good Are They?
March 5th, 2014 by Dr. John Quintner

 Most fibromyalgia sufferers will at some stage be offered a prescription for one or more of the officially approved drugs – Lyrica, Cymbalta, and Savella.
Many will ask their doctors two important questions: How good are these drugs and what harm can they cause me?
Many would be surprised by the answers they get – if the doctor is willing and able to provide them.

 http://americannewsreport.com/nationalpainreport/drugs-fibromyalgia-good-8823155.html

<><><><><><><><><><><><><><><><><><><><><><><><>


 Enlightening, Empowering, Innovative, Inspiring, a place where lasting happiness and BLISS are the goals.

 http://spiritualityhealth.com
<><><><><><><><><><><><><><><><><><><><><><><><>

 Mayo Clinic Guide to Pain Relief, 2nd Edition
How to manage, reduce and control chronic pain 

Advances in pain treatment are occurring at a rapid pace.
Mayo Clinic wants to share with you these latest advances for treating arthritis, migraines, low back pain, fibromyalgia, and painful illness and injury. The new edition of Mayo Clinic Guide to Pain Relief brings you all this and more.
Mayo doctors know how pain interferes with sleep, work, social life, and simple daily life. We help our patients meet these challenges every day, and we'd like to help you, too.

 https://store.mayoclinic.com/products/books/Details.cfm?mpid=150&trkid=22786S779168180&xid
<><><><><><><><><><><><><><><><><><><><><><><><>


Daily Newsletter, March 3rd, 2014

Weekly Newsletter, March 5th, 2014

Daily Newsletter, March 6th, 2014

Daily Newsletter, March 7th, 2014
<><><><><><><><><><><><><><><><><><><><><><><><>

 Norah Wickerson will be back next week with her second article for us. I'm looking forward to it.
Until then . . . . keep smiling
Stella
<><><><><><><><><><><><><><><><><><><><><><><><>

<><><><><><><><><><><><><><><><><><><><><><><><>

 N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. 
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

Posted by

FMS eNews 01/03/14

We are very fortunate that Norah Wickerson (The Combination Approach) has promised a series of articles especially for FMS eNews. The first is included in this issue and they will follow fortnightly.  Thank you Norah.
Lots of other stuff for you as well though!

<><><><><><><><><><><><><><><><><><><><><><><><>

WORDz for the WEEK

 157.  Life is far too often over-complicated and under-valued.

<><><><><><><><><><><><><><><><><><><><><><><><>

The Combination Approach by Norah Wickerson
Norah Wickerson
I was a sufferer of Fibromyalgia myself for over twenty years before I developed my Combination Approach in 2000, which helped me to attain better health than I had ever known.
Since then I have been having some great success treating other patients with Fibromyalgia using my Combination Approach.

 Read more ->  http://www.tacklingfibro.co.uk/

 Here is the first of Norah's Articles: 
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Norah_Wickerson_Article-01.pdf

<><><><><><><><><><><><><><><><><><><><><><><><>

FibCon 28th-31st March, Chichester Park Hotel.

 Inclusive cost, £200.  A few places still available.  Book soon.

 See latest information: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/14.01.18_5thFibConNEWSFLASH.doc  and
Booking Form: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/14.01.18_5thFibCon_BKG_FORM.doc

<><><><><><><><><><><><><><><><><><><><><><><><>

From Adrienne Dellwo
Adrienne Dellwo
Please accept my apology for the double newsletters last week! A technical glitch caused an automated one to be sent out along with the one I put together myself. It shouldn't happen again! Now for what's in this issue:
Exercise causes all kinds of increased symptoms in ME/CFS. New research focusing on pain leads to some interesting results.
That's below.
Also this week, a review of structural abnormalities in the fibromyalgia brain, and how you may be able to create your own support network with minimal effort.
Down in Featured Articles, you can learn a lot about the sleep issues we face.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/3053026a860001522b002606.htm

<><><><><><><><><><><><><><><><><><><><><><><><>

Drugs to Treat Insomnia

 In some cases, doctors will prescribe drugs for the treatment of insomnia. All insomnia medications should be taken shortly before bed. Do not attempt to drive or perform other activities that require concentration after taking an insomnia drug because it will make you sleepy. Medications should be used in combination with good sleep practices.
Listed below are some drugs that can be used to treat insomnia.

 http://www.webmd.com/sleep-disorders/insomnia-medications
<><><><><><><><><>

Slideshow: The Truth About Omega-3, the Good Fat
Doctors may tell you to cut the fat, but not all fats are unhealthy. Omega-3 fatty acids may have far-reaching health benefits. Studies suggest they help lower the risk of heart disease, the nation’s top killer. They may also protect against depression, dementia, cancer, and arthritis. Omega-3s are found in salmon, walnuts, spinach, and more – but the health benefits can differ greatly from one source to another.

 http://www.webmd.com/diet/ss/slideshow-omega-3-health-benefits?ecd=wnl_fib_022514&ctr=wnl-fib-022514_ld-stry&mb=m7ZgnqG1govB9suQORgYx2dEpmNqbUHLHcFiuenJAyY%3d
<><><><><><><><><>

Slideshow: Brain Foods That Help You Concentrate
Ginseng, Fish, Berries, or Caffeine?
Listen to the buzz about foods and dietary supplements, and you'll believe they can do everything from sharpen focus to enhance memory, attention span, and brain function.
But do they really work? There's no denying that as we age, our body ages right along with us. The good news is that you can improve your chances of maintaining a healthy brain if you add "smart" foods and drinks to your diet.

 http://www.webmd.com/add-adhd/slideshow-brain-foods-that-help-you-concentrate?ecd=wnl_slw_022714&ctr=wnl-slw-022714_ld-stry&mb=m7ZgnqG1govB9suQORgYx2dEpmNqbUHLHcFiuenJAyY%3d

<><><><><><><><><><><><><><><><><><><><><><><><>

Drink this 2 hours before bed to sleep better (plus 5 tips for insomnia) by Mike Geary


I've noticed in my travels and with working with clients that a large majority of people in today's fast-paced stressful world are struggling at least part of the time with falling asleep at night.
Over the years, I've also struggled on occasion with insomnia because of the stress placed on me by running a large publishing business.  And I've researched and learned quite a few tips and tricks over the years to help fight insomnia and fall asleep faster.
Without diving into every single technique I've learned over the years, I'll just touch on a few really simple, but powerful tips, foods, drinks, etc that I think can help you to fall asleep easier and faster too!

 Here goes:. . .
http://www.truthaboutabs.com/before-bed-drink.html

<><><><><><><><><><><><><><><><><><><><><><><><>

Welcome to the latest ACT (Arthritis Care Together) newsletter

 There are around 10 million people with arthritis in the UK. That’s 10 million individuals, plus their families, each affected in a unique way.

From high quality information and support to empower you to take control of your arthritis, to campaigning for change…
Arthritis Care is here for you.

 http://mmc.yourcrm.co.uk/app/e/v/10229-349-34.aspx

<><><><><><><><><><><><><><><><><><><><><><><><>

Epsom Salts For Pain and Stress Management

Epsom salt, named from a bitter saline spring at Epsom in Surrey, England, is not actually salt but a naturally occurring pure mineral compound of magnesium and sulfate. Long known as a natural remedy for a number of ailments, Epsom salt has numerous health benefits as well as many beauty, household and gardening-related uses.

 http://fibrotv.com/2014/02/epsom-salts-for-pain-and-stress-management/
<><><><><><><><><>

About FibroTV - What is FibroTV?

 FIbroTV is community designed to bring the chronic Illness and chronic pain community together in a POSITIVE way.
It is a place to educate family, friends, the public  about Chronic illness. I have had fibromyalgia since I was a young teen and recently diagnosed with lupus. A lot of the support sites are very negative which is to be expected because of the daily struggles we face with chronic illness. But I want people to use this place to encourage, dream, hope, believe that even though some chronic illnesses can be debilitating we need to focus on our abilities not our disabilities

 http://fibrotv.com/about-fibrotv/

<><><><><><><><><><><><><><><><><><><><><><><><>


Make prescription charges fairer
Prescription charges have increased for 33 of the last 34 years and the list of condition exemptions was drawn up in the late 1960s.

Research conducted by the Prescription Charges Coalition of over 30 charities and organisations has found that people with long-term conditions in England are having problems.

 Sign the Petition against the unfair and outdated system of prescription charges for millions of people in England with long-term conditions.

 http://campaigning.bhf.org.uk/ea-action/action?ea.client.id=57&ea.campaign.id=26016

<><><><><><><><><><><><><><><><><><><><><><><><>

The Truth About Vitamins and Minerals
Choosing the nutrients you need to stay healthy

 Vitamins and minerals are so important that health fails if you don't get a steady supply of them. Do you know what you can do to make sure your body gets enough of all the vitamins and minerals it needs? Or how these nutrients lower the risk of diseases, including stroke, diabetes, and cancers?
You can find out in Vitamins and Minerals, a Special Health Report from the doctors at Harvard Medical School. This instructive and empowering report will give you a practical understanding of the roles these nutrients play in protecting health and preventing illness.

 http://view.mail.health.harvard.edu/?j=fe5917717c600c797d15&m=febb15747d630d7a&ls=fdb6157476600179721278736d&l=fe54157873610278761d&s=fdf31576706505787c12717c&jb=ffcf14&ju=fe2c17787364047d7c1677&r=0

<><><><><><><><><><><><><><><><><><><><><><><><>


 Warning

 Sainsbury's recalls by Sainsbury's Frozen Sticky Toffee Sponge Pudding due to possible contamination with small pieces of metal
Sainsbury's has recalled the implicated product and have displayed product recall notices in stores. These notices will alert consumers to the recall and advise them of the actions to take if they have bought the product. A copy of the consumer notice issued by Sainsbury’s is attached.
No other Sainsbury's products are known to be affected.

 http://www.food.gov.uk/enforcement/alerts/2014/feb/sainsbury-toffee-pudding#.Uwzr74bw-b4

<><><><><><><><><><><><><><><><><><><><><><><><>


Mercury is good for children and other insanely stupid health lies still pushed by the nutritionally illiterate media

 If you want to get truly terrible advice on health, foods and nutrition, just tune into the mainstream media.
Across all the three-letter networks, high-circulation newspapers and establishment websites, you'll discover a bizarre cesspool of truly dangerous, outdated and pharma-influenced health advice that's more likely to get you killed than keep you informed.

 Learn more: http://www.naturalnews.com/044056_health_lies_mainstream_media_nutritionally_illiterate.html
<><><><><><><><><>

Is DHEA a veritable 'fountain of youth' in a bottle?

 A seeming miracle, dehydroepiandrosterone (DHEA) is known for its ability to turn back the hands of time, decrease fat storage, ease coronary heart disease and osteoporosis, alleviate depression and improve fertility and sexual arousal. But can supplementing with this natural steroid really provide a magical cure-all as many headlines claim? Marcelle Pick, OB/GYN, NP, takes a look at the enthusiasm surrounding DHEA and separates fact from fiction.

 Learn more: http://www.naturalnews.com/044029_DHEA_fountain_of_youth_hormone_balance.html

<><><><><><><><><><><><><><><><><><><><><><><><>

More than 100,000 disabled people had benefits ‘sanctioned’ - By John Pring

 More than 100,000 disabled people had their unemployment benefits removed in just one year as a punishment for not complying with strict new government rules, according to official figures.

 Full story -> http://disabilitynewsservice.com/2014/02/more-than-100000-disabled-people-had-benefits-sanctioned/

<><><><><><><><><><><><><><><><><><><><><><><><>

Sign the Government Petition against Benefit sanctions

 http://epetitions.direct.gov.uk/petitions/58217

<><><><><><><><><><><><><><><><><><><><><><><><>

Living Well with Fbromyalgia, March 2014

 Suffering with a chronic condition can be extremely frustrating, making you feel lonely and misunderstood.

 Developing and nurturing a support system can make some of these horrible 'side effects' just that little bit better.

 http://fibromodem.com/march-2014/

<><><><><><><><><><><><><><><><><><><><><><><><>


Daily Newsletter, Feb 22nd, 2014

Daily Newsletter, Feb 23rd, 2014

Daily Newsletter, Feb 24th, 2014

Weekly Newsletter, Feb. 26th, 2014

Daily Newsletter, Feb 26th, 2014

<><><><><><><><><><><><><><><><><><><><><><><><>


At last we have seen the sun shining, the wet weather has taken a bit of a back seat.  Perhaps we can now look forward to Spring and Summer.  That might make us all feel better.
Until next time . . . .
Stella

<><><><><><><><><><><><><><><><><><><><><><><><>


<><><><><><><><><><><><><><><><><><><><><><><><>

N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources.
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

Posted by
Subscribe to: Posts (Atom)