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FMS eNews 15/12/12



Hello to you all
I hope you enjoyed last week’s eNews, the first on my new blog.  I received several emails telling me that it was good!  I appreciate your support.  I HAVE managed to put in some illustrations this week as well.  So here we go again.

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WORDz FOR THE WEEK
97.  A mid-life crisis is when you’ve gotten to the top of the ladder and realized it’s against the wrong wall.
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Feeling Fibro Foto Competition

Thank you if you voted.  We didn’t win but we came 15th out of 68 entries!  

If you wish to view the entries go here

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Articles by Adrienne Dellwo, from FM & CFS on About.com

 Tea for Fibromyalgia & Chronic Fatigue Syndrome
Tea is one of the most popular drinks in the world, but it's way down on the list in the U.S., coming in behind coffee and soda. In the past few years, however, studies suggesting health benefits of tea have certainly raised their profile and popularity here.

So is it all hype, or is there something to it? According to research, it looks like tea has several things to offer. Much of the research is in its early stages and some results are contradictory, but a picture is emerging.

Fibromyalgia's Impact on Relationships
A new study provides evidence that fibromyalgia not only can have a negative impact on relationships, but does so in a large portion of people with the illness.

Piling On Diagnoses with Fibromyalgia & Chronic Fatigue Syndrome
If you have fibromyalgia or chronic fatigue syndrome and nothing else, you're both lucky and rare. Most of us have diagnosis after diagnosis, and they just keep coming.

Illness Clusters: The Reason Fibromyalgia & Chronic Fatigue Syndrome "Bring Friends"
Most people with fibromyalgia (FMS) and chronic fatigue syndrome (ME/CFS) also have a few other illnesses, and both research and observation have long shown that specific illnesses tend to accompany FMS and ME/CFS.

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PosturePlast Trial for fibromites

Dr Adam Dallison Registered Osteopath & Founder of PosturePlast has offered fibromyalgia sufferers a free trial of his PosturePlast.  It actively works with your body to relieve lower back pain.  Contact Dr Dallison direct if you would like to take advantage of his offer.
Mobile:  07775 595278

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How Magnesium Helps You Sleep
By Judy Phillips - Master Herbalist
When the things that “go bump in the night” seem like sonic booms and wake you from sleep, the problem could be magnesium deficiency. Among its many important qualities, magnesium has a calming effect on the nervous system. In fact, magnesium has recently received considerable attention as an inexpensive dietary supplement that can resolve and alleviate many sleep disturbances.
To date, over 200 published clinical studies document the importance of magnesium. Many of these studies were completed within the last decade, supporting the theory that changes in the American diet have further depleted our bodies’ reserves of magnesium.

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Coconut Water Health Benefits - What is Coconut Water?
Coconut Water is the nutritious clear liquid inside the coconut fruit which is packed with vitamins and minerals. There is usually more water in a young coconut, since the water is replaced by the white coconut flesh as it matures. Therefore, for drinking purposes, coconuts are harvested off the trees when they are still young and green. Later, the outer green husk is removed and the coconuts are wrapped in plastic to keep the moisture.

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How to Make This a Joyful Holiday
Even for those Feeling Lonely, Depressed or Emotionally Overwhelmed
© 2012 Health Realizations, Inc.

 Even though the holidays are supposed to be a joyous time of year as you celebrate with family and friends, they have the tendency to elicit feelings of depression, loneliness and despair, leading to bouts of depression and a sense of feeling utterly overwhelmed by expectations.

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George Osborne and the ConDems are attacking and stigmatising benefit claimants.  Is this an affront to British decency ? Have a read of the article in the Guardian –

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Why You Should Be Thinking About Positional Cervical Cord Compression (PC3)
by Andrew J. Holman, M.D.
 
Spinal Cord Compression has been found in a high percentage of Fibromyalgia patients, Here’s hoping that in the near future the NHS will take this information on board because there is actually an effective therapy for it. It would save the NHS £millions!!


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A Compilation of Letters for Friends, Family, and Ourselves
Written by Starr
This is a collection of letters I have gathered over time to help you explain and describe Fibromyalgia to your friends and family. Amongst these are also a few from Friends and Family members to those of you who are in a care-giving positions, yourselves.
Many people have been helped by these letters. Please feel free to make use of them to aid in your own situation. The more our loved ones understand, the easier our lives will be.

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Understanding Fibromyalgia If You Are a Friend or Family Member of a Sufferer

If you are a friend or family member of a person who has Fibromyalgia, it is vital that you educate yourself thoroughly on the condition. Fibromyalgia can be a very complicated condition for the sufferer, as well as those people the sufferer comes in close contact with. It is not easy to detect when a person has Fibromyalgia because you cannot see the effects of the illness visibly. Many times, people may take for granted that a person is truly sick if they cannot visibly see the illness. In this article, I will explain general ways that a person can understand Fibromyalgia if they are a friend or family member of a sufferer.


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Fibromyalgia's Impact on Personal Relationships

Dawn Marcus, MD had been treating fibromyalgia patients for many years but it wasn't until someone close to her developed fibromyalgia that she began to really understand how much of an impact FM can have on a person's closest personal relationships. . . . . . .


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 My Family News


This is my way of sending Christmas greetings to all my friends.  I count you all as Friends. 

My Christmas Newsletter can be found here  


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Please feel free to forward this link to anyone you think would benefit from it.  Anyone who lets me have their email address will be notified when a new eNews is posted on the blog.  Please send to fmsstella@gmail.com
Next blog?  I don’t know yet.  Maybe next week, maybe after Christmas.  I will notify those on my list when it’s available.  Meanwhile, take care, look after yourselves, don’t overdo things at Christmas, but have a great time.
Fondest wishes
Stella

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N.B.   I would like to point out to you that the information in my eNews  blog is passed on to you mainly from other sources.   Links are given to the original articles.   I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership.  Sites I refer you to are  for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.  
I also include various awareness items, benefits issues, as well as general health considerations.    Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
I previously sent out emails as FMSSAS eNews.  Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com  These ceased at the end of November 2012 when I resigned as a trustee. This blog commenced on 8th December 2012.


FMS eNews 08/12/12



Hello, and welcome to my new FMS eNews blog.

I hope to provide you with links to websites and other ideas that will give you ammunition to fight that ogre, fibromyalgia.  It won’t be very different from the old eNewsletters that I sent out from FMSSAS.   If anyone reading this is not on my emailing list and would like to receive a reminder whenever a new eNews is posted on this blog, please email me at fmsstella@gmail.com and I’ll add you in.  Anyone can contribute to this blog by adding comments at the end of my message.  Give us your tips, ask questions, make your recommendations, tell us your passions and your hates!  This doesn’t need to be onesided!  If you want to contact me privately please use the email address above.  I would like all this to be more interactive than in the past.  We shall still have Wordz for the Week from Donnie Khun’s book Wordz for the Day.  Wordz of wisdom most of us would not even dream of.
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WORDz FOR THE WEEK
96.  Whether you believe you can or whether you believe you can’t, you’re absolutely right.
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So here we go with the first blog at this new URL!  I hope it will be useful to you.
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Pain management health centre - What is fibromyalgia?
Fibromyalgia, also known as fibromyalgia syndrome, is a chronic condition that characteristically causes pain all over the body, including muscle and joint pain, and fatigue as well as other symptoms. Fibromyalgia can lead to depression and social isolation.
In this overview of fibromyalgia syndrome (FMS), we'll explain the symptoms. We'll talk about diagnosis and treatment. We'll also explain the impact fibromyalgia has on lives. The impact comes from the tremendous physical and psychological strains that come with FMS. Those strains can lead to los http://www.webmd.boots.com/pain-management/arthritis-fibromyalgia of work hours, reduced income, and even loss of a job.
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Distractions!
Distractions can be therapeutic!  They take your mind off pain and problems even though that might not be permanent!  But it helps:


 My pet one is Knitting.  And knitting for charity gives an extra feel-good factor.  In case you want to try it go here http://www.knittingforcharity.org/
How about Sudoku?  Another favourite of mine.  Millions of puzzles are here http://www.websudoku.com
All kinds of crafts here  – help you get ready for Christmas!  You have to register/sign in.  http://www.favecrafts.com/
Or what about Crosswords?  http://dowedo.net/
Do something, have fun, enjoy yourself!
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Living Well with Fibromyalgia
FibroModem Magazine - December Volume 1: Issue 3
Are you voting for our photo in the FibroModem competition – every day?
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An inspirational Video.


Believe in yourself and anything is possible!  From wheelchair to crutches to walking to running.  From total immobility and obesity to agility and fitness.

  

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MANAGING FIBROMYALGIA #30 - 12-1-12   
By Pati Chandler,
HI Everyone!
As you may know I am a chronic compulsive obsessive researcher. And I try to keep my ears open when I chat with other folks who have chronic painful conditions. I pick up a lot of tips and ideas and helpful methods for managing pain and other symptoms, from all over the place. I thought I'd share some of these things. 
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 If you have ME/CFS, odds are good that your heart rate falls outside of normal parameters, especially in certain situations. See how that could be responsible for misfires in your brain.

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Temperature. Smells. Noise. Textures. What doesn't bug us? Find out why we're so sensitive  to ... well, the world.
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See what's different about the form kids and teens get, and what they can expect as they get older.
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Dr. Pellegrino's fibromyalgia diet: It's metabolic, my dear
Dr. Pellegrino has seen thousands of fibromyalgia patients in his practice at Ohio Pain & Rehab Specialists, and has had fibro himself since childhood. This information is reproduced here by popular demand, with his kind permission.
A common problem observed in Fibromyalgia is weight gain. Many patients complain to me that weight gain became a major problem once Fibromyalgia established itself. . . . . . .
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Protozoal Infection -- The Next Big Discovery?
A New Protozoa Appears Linked To Mystery Diseases
By Marc Braman, MD, MPH
 New findings of a previously unknown protozoa in patients with conditions such as lupus, chronic fatigue, multiple sclerosis, Lou Gehrig's disease, etc may prove to be a major medical breakthrough.  While there are still some pieces of the puzzle to be proven, there are many pieces that fit so far.  Treatment may prove very challenging, but lifestyle and diet has a surprisingly profound effect on the organism and patients.
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Posted by Michael Moulding (cause leader of KEEP Disability living allowance say NO to reforms )
Help this cause grow
We need more members to join our cause to help us reach the 100,000 signatures needed to force Parliament/government into a rethink. Please add friends, family, disabled people and their carers to our cause. Thank you.
Please sign our petitions, share, email and twitter. They take 2 minutes to sign. Thank you
http://links.causes.com/s/clGDHt?r=HEKp - Repeal the Welfare Reform Act 2012
http://links.causes.com/s/clGDHw?r=HEKp  - Stop the abolition of Disability Living Allowance
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ME/CFS/FM Recovery Programme
So What is The M.E, CFS and Fibromyalgia Recovery Association?
It is a social enterprise formed to educate, inform and inspire those suffering or dealing with M.E, Chronic Fatigue Syndrome and Fibromyalgia.

The Association has been founded by those who have personally experienced M.E but now feel fully recovered, along with those who have dedicated their working lives to helping others to recover. 
http://www.mecfra.org/
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Sleep Disorders Health Center
Sleep Quiz: Do You Know Your Sleep A-to-Zzzzs?
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The MicroDoctor® - Cutting edge technology to give you EFFECTIVE pain relief

If you suffer with aching joints, muscle pain, rheumatoid arthritis, back pain, tendonitis, ligament injuries, fatigue or any other chronic pain condition then look no further.
The MicroDoctor® is a hand-held device for home use. It will not only provide effective pain relief but it will also speed up the healing process.
Unconditional 90 Day Money Back Guarantee

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 How to make your body invulnerable to disease
With Eat & Heal you’ll learn…

 What to add to your diet so that you  never have to fear arthritis again                                                
 Foods that can alleviate and even cure

 common ailments like backaches 
 8 Effective tips and remedies  to lower cholesterol 
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UK Fibromyalgia – Claiming Benefits
An extensive lists of sites relating to the Benefits system.

  
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I thought that as an experiment I would add a few illustrations but won’t promise to always do it.  It’s a bit time consuming!
If you have any ideas or items you would like included in future eNews, please let me have them at fmsstella@gmail.com
May God bless you all
Stella
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N.B.   I would like to point out to you that the information in my eNews  blog is passed on to you mainly from other sources.   Links are given to the original articles.   I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership.  Sites I refer you to are  for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.  
I also include various awareness items, benefits issues, as well as general health considerations.    Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
I previously sent out emails as FMSSAS eNews.  Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com  These ceased at the end of November 2012 when I resigned as a trustee. This blog commenced on 8th December 2012.