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FMS eNews 09/01/2016

Thank you to those of you who sent Christmas and New Year messages to me and my family.  They are much appreciated.
This week we learn of Hyperbaric Oxygen Therapy and Neurobiology & Epigenetics - more possibilities of effective treatment for fibromyalgia.
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WORDz for the WEEK

 254.  The only way to reap the harvest is to sow it first.
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 Are you afraid of the pain of mammograms? See what to expect when you go in for this important test and how to keep it from spiking your symptoms, below.
Also this week, we'll look at how best to approach New Year's Resolutions, then we'll explore your brain -- what we know about brain fog and more.
Take care of yourself!
Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert
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Types of pain and how to manage it all

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January5, 2016 - Counting My Spoons Weekly Update - 3 new posts

 Vote for Julie
Counting My Spoons has been nominated as one of the Best Health Blogs of 2015. I'd really appreciate your vote to help me win this honor.
To vote:
• Click on Vote for Julie
• Type "Counting My Spoons" in the contestants search bar.
• Click Vote
You can vote once a day (through Jan. 21) via both Twitter and Facebook, so please do! I really appreciate your support.
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 5 Ways to Start the New Year Healthier
It’s a new year. It’s hard to believe because the old year went by so fast. I don’t know about you but I’m feeling it. I’m feeling the pace that I’ve been “running” at for the last year or so. I’m feeling reminders that I have a chronic illness. I’m feeling the reminders that I’ve let some of my healthy habits slip a bit and I need to return to them. That’s just what I’m focusing on as I begin this new year. Here are a few of the items on my checklist towards a healthier new year, perhaps they are on yours as well?
Read what Julie says about these:-
 1. Stretch 
 2. Cut Processed Foods
 3. Juice
 4. Forgive 
 5. Find Your Happy
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 Top 11 Chronic Illness and Fibromyalgia Medical Studies
Did you see these chronic illness and Fibromyalgia medical studies from last year? Granted all of these studies weren't from 2015 but they are all still interesting. Distraction as a Pain Reliever - This was the most popular medical study post from last year. Do you use distraction as a form of pain reliever? 

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FIBROMYALGIA AND ME/CFS NEWS (WEEK OF DEC. 28, 2015)
I wasn’t planning to publish a news post this week because I’ve had family visiting from out of town, but I saw several New Year’s-related stories that are worth sharing. Hope you have a wonderful New Year’s Day and that your recovery is speedy if you happened to have celebrated last night! 
Top story …

  •  Leading researcher says ME/CFS will be “solved” in three to five years.

Looking forward and back …

  •  Grace is Sufficient gives us tips on how to set and achieve goals when living with chronic illness.  This is timely info for the New Year! And About.com’s Adrienne  Dellwo also tackles the topic of goal setting with fibro and ME/CFS.
  •  “A Chronic Illness Warrior’s Guide to New Year’s Resolutions”
  •  National Pain Report revisits its top fibro posts from 2015 and also reflects on why “2015 is a Big Year for Medical Marijuana.” 
And more . . .
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Week of Jan. 4, 2016 Fibromyalgia and ME/CFS news

  • Top headlines …
  •  Lyrica makes list of most profitable drugs for 2015.
  •  Congress is investigating new opioid prescribing guidelines proposed by the (U.S.) Centers for Disease Control and Prevention, reports Pain News Network.
  •  Fibromyalgia symptoms often worsen during the cold-weather months. Everyday Health gives us “5 ways to stay pain-free this winter.”
  •  Fellow fibromyalgia blogger Grace is Sufficient shares “12 tips to make grocery shopping easier.” 
  •  Health Rising reflects on 2015’s best and worst news for the fibro and ME/CFS communities. And Counting My Spoons compiles a list of 11 top chronic illness and fibromyalgia medical studies.
  •  I bet a lot of us can relate to this humorous list: “You might have fibromyalgia if…”
And much more . . .

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Book Review “Breakthrough for Chronic Fatigue Syndrome, M.E. and Fibromyalgia.” by Judith Maizel with Fiona Adamson

 The sub title is ‘How Neurobiology & Epigenetics Point the way to recovery’. 
The book is reviewed by Jeanne Hambleton who says "In case you are wondering, neurosomatic illness is described as brain/body illness. The biology of the nervous system is neurobiology and epigenetics is biology resulting from external rather than genetic influences.
This wonderful book, full of research, promises and hope, was written by Judith Maizel PhD MBHMA, with Fiona Adamson M.Litt. Adv.Dip. Pych. MBACP. Judith suffered CFS/ME for 25 years before she found the pathway to good health and compiled the recovery programmes within the root cause of the condition. 
Read more . . .
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 TECHNICIANS TRIAL NEW YEAR FITNESS SCHEME IN A LONDON GARAGE
From Jeanne Hambleton FMS Global News
The only reason I can think of for writing about this press release is my spare tyre, fitness, the play on words and the photo….
Getting rid of my spare tyre after all that Christmas pudding is the real reason I am writing this … but I do literally need to get my own spare tyre in shape.
SWNS Digital tells me Kwik Fit tyre technicians are trialling a fitness scheme in a London garage, which will actually help people lose their bodily ‘spare tyres’.
The crew has teamed up with a personal trainer to devise a system – Fit Kwik – using only car and van tyres.
Read on . . .
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Study: Fibromyalgia Sufferers Have Trouble Processing Sight, Sound, Touch
(New?) research provides even more evidence that people with fibromyalgia have a real pathology and that it may be linked to trouble processing everyday sights and sounds.
Fibromyalgia Sufferers Have Trouble Processing Sight, Sound, Touch
In a paper published earlier this month (September 24, 2014) in Arthritis & Rheumatology, Marina Lopez-Sola of the University of Colorado, Boulder, showed that people suffering from fibromyalgia are hypersensitive to everyday sensory stimulation. This includes sight and sound cues as well as touch. Fibromyalgia causes feelings of general malaise in addition to severe aches and pains.
Read more . . .
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Living with Fibromyalgia, Drugs Approved to Manage Pain
After meeting on the Internet in 1997, Lynne Matallana and Karen Lee Richards discovered they had a lot in common. They both had seen numerous doctors before being diagnosed with fibromyalgia, a chronic condition characterized by fatigue and widespread pain in muscles and joints. They both had trouble finding medical information and support for coping with the illness. Seven months after meeting, they started gathering with five other people with fibromyalgia who also wanted to bring awareness to the issue.
“We called ourselves ‘the pillow posse’ because we would meet and have our pillows to support our aching bodies,” Matallana says. Those gatherings grew into the National Fibromyalgia Association (NFA), an organization that now provides support, research information, medical education, and messages of hope to millions.
Read on . . .
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 UK Fibromyalgia Newsletter January 2016
Happy New Year to all our readers
Every month we collect all the relevant fibromyalgia research from around the world so that you can keep informed about your condition. As well as this email newsletter, we also produce the original and independent Fibromyalgia Magazine which is available in a print format or in a more cost effective digital format,which is ideal for international readers.
The January 2016 edition of the Fibromyalgia Magazine is out for only £2.29.
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 New Israeli Treatment For Fibromyalgia Helped 100% Of Sufferers In New Study
A clinical trial involving women diagnosed with fibromyalgia showed the painful condition improved in every one of the 48 who completed two months of hyperbaric oxygen therapy. Brain scans of the women before and after treatment gave credence to the theory that abnormal conditions in pain-related areas of the brain may be responsible for the syndrome.
Hyperbaric Hope For Fibromyalgia Sufferers - Mike Williams • Rice University 
Rice University part of Israel study to test novel treatment for little-understood condition
Women who suffer from fibromyalgia benefit from a treatment regimen in a hyperbaric oxygen chamber, according to researchers at Rice University and institutes in Israel.
A clinical trial involving women diagnosed with fibromyalgia showed the painful condition improved in every one of the 48 who completed two months of hyperbaric oxygen therapy. Brain scans of the women before and after treatment gave credence to the theory that abnormal conditions in pain-related areas of the brain may be responsible for the syndrome.
Read more . . .
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Newsletter! Jan. 2nd, 2016 A






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 I am pleased to say that my post-Christmas malaise has passed.  I am feeling 'normal' again.  That's fibro-normal!!  Hope you are better than 'normal'.
All good wishes
Stella
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or leave your comments below under 'Post a Comment'
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 N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in GREEN like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation problems, let me know. 
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgments, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity although I do work in conjunction with other bloggers and Facebook groups.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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FMS eNews 02/01/2016


My first duty in 2016 is to wish all my readers a very Happy New Year. It's hard to realise that 2015 has now gone and we have 2016 to look forward to and to cope with as best we can.  Find as many coping strategies as you can, and let us all know about them. You can reply in the 'Post a Comment' section at the end of this page, email me fmsstella@gmail.com  or leave a message on Facebook 
Although I didn't publish a blog last week I was collecting items for this week. This week I have not been able to do as much as I would have liked.  I don't know if it's a fibro flare, flu, a cold, or a virus, but I have not been feeling good at all.  I can't blame it on Christmas because I was waited on hand and foot by my wonderful daughter.  All she would allow me to do was to cut up some carrots, and that wasn't exactly taxing!  I did rally enough on Tuesday to help her and her husband celebrate their 30th wedding anniversary - and that was in a hotel! Christine is in the first group from WORDz for the WEEK, and I am proud to give her the credit.
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WORDz for the WEEK

 253. There are two kinds of people in this world; those who do the work and those who take the credit.  Be in the first group; there's much less competition.
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Fight Your Symptoms. Now!

What would you say if I told you that you could do a few things -- right now -- that could ease your symptoms? And what if they were free, easy, and didn't involve side effects? You'd do that, right? Hey, even if it's just to prove me wrong, you should try the 5 fun things I talk about below.
Also this week, a look at some of our symptoms, including some major ones and some that nobody really talks about.
I hope you're taking it easy in these last two weeks of the holiday season. Be sure to take extra good care of yourself!
Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert
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 Preparing for the New Year

What would you like to do differently in 2016? Whether you're making New Year's resolutions or just trying to improve habits now that the Christmas craziness is over, there's a right way to do it and, perhaps more importantly, a wrong way. We'll look at that below.
First, of course, you need to give yourself time to recover. We'll explore recovery times as well as treatments that may help you get through it.
Take care of yourself!
Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert
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Fibromyalgia: Your daily diet, the problem areas & healthy changes

It is often tricky for fibromyalgia sufferers to get a diagnosis, as common inflammatory markers may be absent and there is frequently no observable damage or deformity to any of the areas that are painful.
Adding to the confusion when trying to reach a diagnosis is the fact that fibromyalgia is a syndrome encompassing a range of symptoms that not every sufferer will experience. Pain is common to all, but fatigue, sleeping disturbances and digestive complaints are present in varying combinations.
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When you are dealing with the symptoms and issues that often come alongside fibromyalgia, you may be in a situation where you are fighting off the muscle spasms that make it even more uncomfortable. 

 Continue reading
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Counting My Spoons Top Spoonie Posts of 2015

Merry Christmas!  and Happy Holidays! I hope you are having a wonderful day and weekend with your family. Since it’s a holiday I’m forgoing the normal post for today and instead I’m going to give you another chance to check out the Counting My Spoons Top 10 Posts of 2015. These are the posts that you (and readers like you) enjoyed the most, that you enjoyed enough to share and share again. I really appreciate that and I really appreciate you.
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7 Signs Your Mattress Is Making You Sick

According to the National Heart, Lung and Blood Institute sleep is key to good health and a sense of well-being hroughout one’s life. Quality sleep benefits our minds and bodies in many ways. Several studies link insufficient sleep with weight gain, diabetes, heart disease, high blood pressure, depression, inflammatory diseases and life expectancy.
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HOW TO USE MEDICAL MARIJUANA WITHOUT GETTING HIGH

Hi everyone! New post today! NationalPainReport.com recently published my story, “How to Use Medical Marijuana without Getting High.” There's been a lot of media coverage lately about using medical marijuana for fibromyalgia, so I thought some of you might be interested in reading it. 
The research may be slim, but there are plenty of anecdotal accounts indicating marijuana can be effective at reducing fibromyalgia pain. Visit any online fibromyalgia support group, and you’ll find more than a handful of pioneering members who have sworn off pharmaceuticals and instead toke up regularly for pain relief and better sleep.
But if you’ve never tried marijuana before, the idea of using it – even for medicinal purposes – can be scary and more than a little overwhelming.
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 FIBROMYALGIA AND ME/CFS NEWS (WEEK OF DEC. 21, 2015)

Top stories …

  • Good news for Savella users: A generic is coming!
  • I bet a lot of our federal legislators had no idea this was included in the latest 1,000+ page budget bill: “Congress quietly ends federal ban on medical marijuana”
  • Nonprofits, bloggers and healthcare professionals form new ME/CFS advocacy initiative.
  • National Institutes of Health (U.S.) are considering ampligen and rituximab trials for ME/CFS.
  • From TheMighty.com: “Five Ways having Fibromyalgia Makes You Awesome”
  • U.K.-based clinical trial will determine if Cymbalta/duloxetine can effectively treat osteoarthritis.

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 Naltrexone “changed life” of fibromyalgia patient

Janice Hollander
My regular readers know I’m a big fan of using low dose naltrexone for fibromyalgia. I recently had the opportunity to write about LDN and how it’s becoming an emerging fibromyalgia treatment for Pain News Network. The story includes interviews with Jarred Younger, the researcher who conducted the first two LDN/fibromyalgia studies at Stanford University and Linda Elsegood, founder of the LDN Research Trust. I’m reprinting the story here with Pain News Network’s 
permission.
The pain in Janice Hollander’s legs was so excruciating that she wanted to cut them off. Diagnosed with fibromyalgia in 2013, she’d progressed through the normal litany of prescription drugs doled out by physicians – Lyrica, Cymbalta, gabapentin, muscle relaxers and narcotics – all without finding relief.
Then she happened to catch an episode of the Dr. Oz Show where a guest discussed using low-dose naltrexone (LDN) as a treatment for chronic pain. A few days later, she convinced her doctor to write a prescription and took her first dose of LDN.
Read the rest of her story . . .
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 Fibro Flare Magazine, Issue 21, January 2016

The Fibro Flare team would like to wish you a healthier, happier, hopeful New Year.
In this month's issue:
Who were our Top 3 finalists for the New Year's Honours?
Meet up with new fibro friends in 2016.
Forget the old adage 'no pain, no gain' and stay flexible.
Vitamins and Supplements - are they all good? 
Plus much, much more, as always.
Beth X

 PDF Version

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Is It True That The Weather Affects Fibromyalgia Symptoms?

 . . . . Many people who suffer from fibromyalgia also report experiencing a difference in pain levels as the weather changes.
According to a study by Ercolie Bossema, Ph.D. from Utrecht University in the Netherlands, “Many fibromyalgia patients report that certain weather conditions seem to aggravate their symptoms.” These changing weather conditions include precipitation, sunshine, and temperature.
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Is your skin more tender and sensitive during the winter? For millions of people, the winter months can wreak havoc on sensitive skin. For those with fibromyalgia, skin sensitivity yet another painful symptom in an already long list of symptoms that can flare up during the winter months.
While there may not be a way to entirely cure or eliminate this irritable symptom, there are steps you can take to help care for sensitive skin and keep the pain and irritation flare ups in check during the winter months. Try following these 10 guidelines to minimize irritable and sensitive skin this winter.
Find out what they are

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Magnetic Stimulation May Relieve Mental Symptoms of Fibromyalgia

The technique may provide a safe, easy, and noninvasive way to treat the social and emotional symptoms of the disease.
A form of brain-stimulation therapy called repetitive transcranial magnetic stimulation (rTMS) may help relieve some of the non-pain symptoms of fibromyalgia, including emotional distress, and improve overall quality of life for patients living with the disease, according to a new study published in the journal Neurology.
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New drugs for Fibromyalgia that show promise for sleep improvement & pain reduction

A new drug being tested in clinical trials to treat fibromyalgia, called Tonmya, is showing promise for sleep improvement and pain reduction.
Tonmya is being evaluated in the 500-patient Phase 3 AFFIRM study in fibromyalgia. The primary outcome measure for this study is a pain responder analysis, which basically means patients report a minimum of a 30% reduction in pain from their baseline after undergoing treatments for 12 weeks.
The drug is taken at night daily, and researchers are seeing that patients are seeing improvements in sleep.

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So that's it for this week.  It turned out better than I expected despite my limitations. Tonmya and magnetic stimulation look promising and LDN is still being promulgated as the best treatment for FM.  Perhaps 2016 will reveal further treatments that actually work!  We shall have to wait and see.  I will tell you all I can find out.  Will you tell me about any YOU discover?  We must keep good news circulating.
Fondest wishes
Stella
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or leave your comments below under 'Post a Comment'
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N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in GREEN like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation 
problems, let me know. 
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity although I do work in conjunction with other bloggers and Facebook groups.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
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