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FMS eNews 18/10/14

Our Cromer visit is over and we are home again.  The sea view from our window included the pier which was great.  Monday brought a month's rainfall which was devastating, but the other days were OK for the time of year. We did manage a walk on the pier!  We saw our friends each day and did a lot of catching up and visited both of their flats. The hotel was good and our window can be seen on last week's photo at the top left with the white surround!!  

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 WORDz for the WEEK

 190.  People take different roads seeking fulfillment and happiness.  Just because they're not on your road doesn't mean they've gotten lost.
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A New Use for your Tax Disc Holder

 Print the Template and insert I.C.E. (In Case of Emergency) information.  

 https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/ICE_in_tax_disc_holder.pdf
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From  Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

 Evidence of biological abnormalities in fibromyalgia continues to pile up. Below, read about a new study that's the first to look in a particular direction -- and what it found.
Also this week, lessons that healthy people could learn from those of us with these illnesses, plus some seasonal content. Down in Featured Articles, you'll find a ton of information about our symptoms.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/305432f5070001defd003205.htm
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 Dr. Craig on a Nutritional Approach to Fibromyalgia and Chronic Fatigue Syndrome 
In the third of our blog series on using  supplements to treat Chronic  Fatigue Syndrome and/or Fibromyalgia, Dr. CourtneyCraig talks about testing and her approach

 An Interview with Dr. Courtney Craig
You noted that you’d spent thousands of dollars on supplements before you found the approach that worked for you. How long did it take you to do that?

I first sought an integrative medicine doctor when I was 18 years old and was given high dose B-vitamins. Before that, I never considered supplementation as a viable option for symptom management because I didn’t have a clue about the illness. 
Over the course of the next 7 years I tried various supplements in a rather shotgun fashion that never made the slightest dent in my fatigue. This was long before I understood the importance of supplement quality and dosing. It wasn’t until I started with a doctor who used pharmaceutical-grade supplements, under the auspices of Dr. Teitelbaum’s protocol that I started to notice differences.

 Read on:  http://www.cortjohnson.org/blog/2014/10/09/dr-craig-nutritional-approach-fibromyalgia-chronic-fatigue-syndrome-supplements/
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 “End ME/CFS” Mega Chronic Fatigue Syndrome Project Begins 
Now this is exciting.
The Open Medicine Foundation (OMF) has announced it has created and is raising funds for a huge “End ME/CFS” project.  They’re looking for five million dollars a year to  fund it — about double the NIH’s current annual spending on all ME/CFS research. That’s a really ambitious project.  Could they actually pull it off?
“What is needed is a total attack on the problem.” – Ron Davis PhD
I think they could, and the reason why starts with Ron Davis PhD, the originator and leader of the project. Davis has been thinking about producing a high-level consortium to attack Chronic Fatigue Syndrome (ME/CFS) for years. The idea of a consortium immediately came up when I first talked to him about three years ago.  His son, Whitney, had introduced us. Whitney was quite ill then, but since then has gotten much worse.  He now has one of the worst cases of ME/CFS I’ve heard of.
In order to understand where this project is coming from and why it might work let’s take a look at the man behind it.

 Read on: http://www.cortjohnson.org/blog/2014/10/11/end-mecfs-mega-chronic-fatigue-syndrome-project-begins/
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 How To Fight Fibro Symptoms Naturally With Acetyl-L-Carnitine
Continuing the components of Fibrolief.
Among the many possible culprits that researchers hypothesize may cause fibromyalgia is mitochondrial dysfunction. This dysfunction impairs the ability of mitochondria (which are found in nearly every cell in the body) to convert energy into ATP, which provides energy for every cell in the body. This irregularity is commonly (though not always) found in patients suffering from fibromyalgia.
One of the critical substances produced by the body to help mitochondria is Acetyl-L-Carnitine. This amino acid one of several forms of carnitines at work in your body.   It helps carry fatty foods to the mitochondria to be used as fuel and also carries away the toxic waste from the fueling process. In this sense, it helps provide energy for the body and acts as an antioxidant to destroy harmful free radicals in the body.
Now that you’re familiar with Acetyl-L-Carnitine and its functions, lets explore three ways in which it has been shown to help reduce the symptoms of Fibromyalgia:

  1.  Improves Endurance & Reduces Fatigue
 2.  Reduces Pain 
 3.  Improves Mental Health

 See more details:  http://fibromyalgiatreatmentgroup.com/fibromyalgiatreatment/how-to-fight-fibro-symptoms-naturally-with-acetyl-l-carnitine
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 With Fibromyalgia Treatment, One Size Does Not Fit All
Paris—The bulk of evidence to date suggests that treatment of fibromyalgia should be individualized and graduated, with nonpharmacologic approaches preferred to drugs—especially aerobic exercise, according to a fibromyalgia expert.
“There is no magic drug against fibromyalgia, and in my opinion there will never be,” said Winfried Häuser, MD, a clinical researcher at Technische Universitat Munchen, Germany, during his presentation at the European League Against Rheumatism (EULAR) 2014 Congress (abstract SP0061).
Aerobic exercise is the most effective intervention for alleviating fibromyalgia symptoms, Dr. Häuser said. Psychotherapy can help some patients, but physicians should not expect miracles, he said.

 Read on: http://www.painmedicinenews.com//ViewArticle.aspx?ses=ogst&d=Clinical+Pain+Medicine&d_id=82&i=October+2014&i_id=1108&a_id=28441
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A personal  note from Vicky
Party Time!
I hate to say this but Christmas is coming. So it’s party time! I have decided to shut the classes down from Wednesday 17th December (and I’ll adjust your payments).  I know people get wrapped up with Christmas events and attendance drops.  I have booked Pizza Express for 7.30pm on Thursday 18th December (not the 15th as originally suggested in class).  They looked after us very well last year and people have said they would like to go there again.  The three Course menu is £19.95 with a glass of Prosecco included.
I will run off the menu in the next few weeks for people to make their choice and to give us an idea of numbers. 

 Read more: http://us4.campaign-archive2.com/?u=1f0fb2b9eada51a6fa54509ba&id=e0fc0f71ae&e=2a0fc40be9

 Also:
Education: Look after your spine before it goes into decline!
Video of the week: Spiky Balls
Success Story: Trish Moram
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Daily Newsletter - Oct. 10th, 2014

Daily Newsletter - Oct. 11th, 2014

Daily Newsletter - Oct. 13th, 2014

Daily Newsletter - Oct. 14th, 2014

Daily Newsletter - Oct. 14th, 2014

Daily Newsletter - Oct. 15th, 2014

Daily Newsletter - Oct. 16th, 2014
http://us1.campaign-archive1.com/?u=7f494613c5ad4db1b93e647ad&id=26ba2e02aa&e=3a786b8cc1

Daily Newsletter - Oct. 17th, 2014

A Free & Global Event! 


Discover the Secrets to Naturally Heal Your Body...
ONCE AND FOR ALL!

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The consultant from Southampton phoned me on Thursday to say that the MRI scan was clear and I won't need another one for six months.  I have 4 appointments lined up for Crawley Hospital in the Cardiac and Endocrinology departments, the last being on Christmas Eve!  So that will keep me busy!!

 Best regards to all
Stella
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N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. 
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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FMS eNews 10/10/14

Hotel de Paris, Cromer
Tomorrow, 11th, my husband and I are going on a coach trip to Cromer in Norfolk where we will be meeting up with some 'old' friends who we have not seen for several years.  I hope the sun will shine, but I guess we have seen the last of the good weather now.  Anyway, we don't have to drive, so we can relax and enjoy the countryside.  We return on Wednesday so there will not be much time to produce eNews next week.  I have managed a reasonable one this week even though it is a day early!!
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WORDz for the WEEK

 189. Just let go, there's beauty in the breakdown.
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From  Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

 Do you feel weird about using a motorized scooter at the grocery store? What about getting a handicapped license plate? A lot of us feel like those things aren't meant for us, no matter how limited we may be. Learn why they are something you should take advantage of, as well as some other helpful things you might want to consider, below.
Also this week, I'm focusing on improving your function through non-treatment avenues. You might be surprised at how much those little things can add up! This theme continues down in Featured Articles.
I wasn't able to link anything to the forum this week because of some technical glitches. I'll get those added as soon as I can! 
Thank you for bearing with me through all the changes.
Take care of yourself!

 Read on: http://specials.about.com/service/newsletters/chronicfatigue/305429ba8c0001e350003202.htm
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 Creating a Supplement Program for Fibromyalgia and ME/CFS That Works: the Fundamentals 
In the first part of a three-part series on  supplements and Fibromyalgia and Chronic Fatigue  Syndrome we looked at Five Supplement Mistakes You Don’t Want to Make With Chronic Fatigue Syndrome and Fibromyalgia.
In part II we discuss how to build a nutritional plan that “works”. By works, I mean that if our health improves – great, if it doesn’t then we can walk away knowing we’ve given it our best shot.

 Read on: http://www.cortjohnson.org/blog/2014/10/05/creating-supplement-program-fibromyalgia-mecfs-works-fundamentals/
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Small Fiber Neuropathy Fibromyalgia Study Raises Questions 

 At least five studies have found significantly increased rates of small fiber neuropathy (SFN) in the skin of people with Fibromyalgia. SFN refers to the damage or destruction of the small unmyelinated sensory and/or autonomic nerve fibers. It’s believed that damage to these nerve fibers may cause symptoms such as tingling, burning sensations and pain.

 http://www.cortjohnson.org/blog/2014/10/07/small-fiber-neuropathy-fibromyalgia-study-raises-questions/
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 Innovative Nutrient Helps Repair Damaged Mitochondria & Reduce Fatigue up to 45% 

 Clinical trials have shown that NT Factor® can actually support the repair of damaged cell membranes - in effect reducing the cells' biological age and restoring mitochondrial ability to generate energy. 
This is true whether the reduced energy/fatigue is from an illness like ME/CFS or fibromyalgia, a side effect of chemotherapy, or simply a result of aging. Studies done with severely fatigued patients in each of these populations demonstrated that NT Factor can support reduction of fatigue levels by as much as 45 percent.(1-3) 

 http://www.prohealth.com/ep/EP100314/index.cfm?slvor=12064.1168797.0.1.0.110434
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Fibromyalgia breakthrough:
Clinical studies indicate that the ingredients in this formulation are highly effective at reducing the symptoms related to Fibromyalgia
In the next few minutes you're going to learn about an all-natural formula with ingredients backed by peer reviewed clinical studies.
I am going to show you how these ingredients have been shown to improve fibromyalgia symptoms and help you return to a normal life.
Here are some of the positive results that our ingredients have achieved for others:

  •     Reduction of lower back pain, headaches, joint and muscle pain
  •     Reduced inflammation
  •     Improved energy levels
  •     Increased mental clarity diminishing the effects of fibro fog
  •     A full nights sleep without waking up groggy
  •     And it's backed by our 1 year money back guarantee

Read more: http://fibromyalgiatreatmentgroup.com

 Two of the ingredients are reviewed below.  Some have been included in previous eNews.
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Four Ways Vitamin B1 Helps Fibromyalgia
Lets face it – we’ve got a lot on our plates these days.  The pace of life seems to be moving faster than it ever has, we’re forced to juggle a seemingly un-juggleable amount of problems and on top of all that we’ve got to try to cope with this widely unknown but terribly debilitating illness called fibromyalgia.
For anyone facing the daunting reality of life with fibromyalgia we recommend making small changes, which over time can have a large impact.  One small change you can start making today is to make sure your body is getting the essential vitamins & nutrients it needs to fight the various symptoms of fibromyalgia.  Among those essential vitamins is B1, which has many properties that can directly benefit fibromyalgia patients.  Lets take a look at four ways vitamin B1 can boost your health:
 1.  Increases energy production
 2.  Improves Brain Health
 3.  Protects Nerves
 4.  Builds Up Stress Resistance

 Read more: http://fibromyalgiatreatmentgroup.com/fibromyalgiatreatment/four-ways-vitamin-b1-helps-fibromyalgia

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Four Ways Rhodiola Rosea Fights Fibromyalgia
Among the natural treatments for the symptoms of depression, fatigue and fibro fog is the herb Rhodiola Rosea.  
Rhodiola Rosea, more commonly known as Arctic or Golden Root, is a plant that can grow in some of the harshest environments on earth.  It is considered an adaptogen, a class of herbs said to help adapt and build a resistance to stress.  Lets take a closer look at how it can relieve some of the other symptoms of fibromyalgia:

  1.  Defends Against Stress
 2.  Natural Energy Boost
 3.  Fights Depression
 4.  Improves Memory & Cognitive Function

 Read more: http://fibromyalgiatreatmentgroup.com/fibromyalgiatreatment/four-ways-rhodiola-rosea-fights-fibromyalgia
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Fibromyalgia Treatment Myths Revealed

 Get A FREE Copy Of This Powerful Book

 Click on 'Download Now' on the above page.  This is a MUST HAVE.
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List of latest Fibromyalgia articles

 http://view.messages.webmd.com/?j=fec510797562047a&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff8e1d78&ju=fe8313767d60017b7d&r=0
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List of latest Chronic Pain articles

 http://view.messages.webmd.com/?j=fec010787260017e&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff991773&ju=fe8c137673640c7575&r=0
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Christmas Stress

 We have had the following request for a feature which gives us another opportunity to get FM out there.  Please contact pam.stewart@fmauk.org with a few details if your profile fits and you would be willing to share your story.
“Women who moaned about aches and pains or migraines during the festive season but put these down to carrying too many shopping bags full of Christmas presents, eating too many mince pies, or stressing about who was coming round for lunch and if they’d bought enough presents – BUT these strains actually led to a more serious diagnosis.”
Any other Christmas related stories would be useful as well.  There are many journalist looking to write Christmas themed health stories.

Thank you for reading this. If anyone has any questions then please email the office on head.office@fmauk.org. 
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A personal  note from Vicky
Happy Birthday to us!!
We have been going for three years now and some of you have been with me from the start, which is very satisfying for me.  We’ve grown considerably during that time to the nine classes we now have at the hall.
We have had several new people joining us this week and there are more men coming along - welcome! There are still some classes which are still just women the boys seem to like safety in numbers!
Several people have told me this week about how wound up they get.  Todays education is how to relax, something we should all try to do.  I hope it helps.  We always do 10 minutes relaxation at the end of our yoga class.  People tell me they sleep very well that night.  Some of you might like to try a Fitness yoga class.  Your first class is free.  Contact me if you fancy trying the class it is more dynamic than the Pilates classes not suitable for everyone. 
Also:
Education: Relax and Stay Calm
Video of the week: Exercise to release tension in the upper back
Success Story: Jeni Webb

 Read the whole newsletter here: http://us4.campaign-archive2.com/?u=1f0fb2b9eada51a6fa54509ba&id=2cdab5f56c&e=2a0fc40be9
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 Release Tension - Soften Muscles - Nourish Joints

 Are your shoulders chronically tight?
Does your neck always feel tense?
Do you suffer with a poor office/sitting posture?
Would you like to learn healthy movements that can help you release tension, lessen shoulder and neck pain, combat fatigue and improve your daily posture? 

 http://us2.campaign-archive1.com/?u=75076062ba40962e2e364d5f4&id=5aba14615e&e=751f85837c
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 Tories: DLA And PIP To Be Taxed, All ESA Claimants To Be Hit By Freeze 

 There are unconfirmed, but entirely credible, reports that the Conservative party is planning to make disability living allowance (DLA) and personal independence payment (PIP) taxable benefits in order to help pay for tax cuts for people currently in the top tax bracket.
In addition, we reveal that all employment and support allowance (ESA) claimants are to be hit with a freeze on their benefits if the Tories get back into government in 2015, not just claimants in the work-related activity group. George Osborne’s weasel words at the Conservative party conference misled many, including us.

 Read more: http://www.benefitsandwork.co.uk/news/2901-newsletter-8-october-2014
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Daily Newsletter - Oct. 4th, 2014

Daily Newsletter - Oct. 5th, 2014

Daily Newsletter - Oct. 6th, 2014

Daily Newsletter - Oct. 8th, 2014

Daily Newsletter - Oct. 9th, 2014

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 I had an MRI liver scan with contrast (injected dye) on Wednesday at Southampton, I should get results next week.  So fingers crossed!
Have a great weekend
Stella
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 N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. 
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

Posted by No comments:

FMS eNews 04/10/14


Next week it will be a limited edition, delivered early, as I shall be away from Friday until the following Wednesday.  So I may not be able to produce much for you then either.  So, it's apologies in advance for any shortfall in the next two weeks. For now, it's business as usual, so here goes . . . .
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WORDz for the WEEK

 188. There are no ORDINARY moments and there is never NOTHING going on.
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 ANOTHER PETITION FOR YOU TO SIGN
David Cameron & Nick Clegg: commit to increase NHS funding

 The petition text:
Dear David Cameron & Nick Clegg
NHS finances are in crisis: life-saving local services are left with no option but to cut back hours or, worse, close down.
The NHS is something we are all proud of. We all benefit from it, and we are all willing to pay for it to keep it our NHS.
Please commit to increasing NHS funding in real terms if you win next year’s general election.

 https://secure.38degrees.org.uk/page/s/david-cameron-nick-clegg-commit-to-increase-nhs-funding#petition
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From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

 Can you read and listen to what someone is saying at the same time? Me neither. See what could be causing our multitasking problems, below.
Then, delve further into the fog that is your mind so you can really understand this pervasive, frustrating, embarrassing symptom. That's both below and down in Featured Articles.
To the right, you'll find more information about your brain - specifically, the neurotransmitters that cause a lot of our problems. Do you know which ones are responsible for which symptoms? Or how to improve their function? That's all in there.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/3054208008000128480031fe.htm
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 Five Supplement Mistakes You Don’t Want to Make with Fibromyalgia or Chronic Fatigue Syndrome 

 “Over the past fifteen  years I’ve spent thousands of dollars on supplements, most of which had absolutely no effect on my symptoms.” Dr. Courtney Craig – Youtube video

 To take or not take supplements is a big question in disorders like Chronic Fatigue Syndrome and Fibromyalgia where the list of FDA approved drugs is short (or non-existent) and not particularly impressive.
Where there are no drugs, though, there are always supplements – each purporting to be helpful – each suggesting it might provide the critical nutrient you need to turn your health around. Hope springs eternal with supplements and maybe it should. 
The supplement field – encompassing herbs, vitamins, minerals, neutraceuticals, probiotics, medical foods, etc. is enormous.  With thousands of combinations available and new possibilities coming out regularly, supplements can potentially make a major impact on our health.

 http://www.cortjohnson.org/blog/2014/09/28/five-supplement-mistakes-dont-want-make-fibromyalgia-chronic-fatigue-syndrome/
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 Symposium Calls For Use of Immunotherapy To Treat Chronic Pain
“Despite the availability of different drugs, most patients with chronic nociceptive pain do not receive satisfactory pain relief…”

 We all know the medical profession is poor at providing pain relief in general, but its record with regards to neuropathic or nerve pain is something else indeed. Despite the fairly large array of drugs physicians use (few of which were developed to reduce nerve pain), no more than 30-40% of  nerve pain patients receive as much as 50% relief from the medications doctors  provide.
Despite research that has uncovered important factors in the production of pain, much clearly remains to be learned.  The production of pathological pain has been shown to be a very complex process. Researchers know, for instance, that damage to the ion channels on nerves, increased levels of excitatory neurotransmitters and reduced activity in the pain inhibition pathways in the brain all play a role.

 See more at: http://simmaronresearch.com/2014/10/symposium-calls-use-immunotherapy-treat-chronic-pain/#sthash.DRtojp1C.dpuf

 http://simmaronresearch.com/2014/10/symposium-calls-use-immunotherapy-treat-chronic-pain/
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 A One-Two Punch for Pain & Fatigue 
A combination of magnesium and malic acid tops the list of recommendations for easing pain and fatigue, especially for those with fibromyalgia or ME/CFS.  

 http://www.prohealth.com/ep/EP092614/index.cfm?slvor=12054.1168538.0.1.0.110434
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Natural Wellness HealthWatch
Other articles from ProHealth

 http://www.prohealth.com/eg/EG100114/index.cfm?slvor=12060.1168669.0.1.0.110434
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 List of latest Fibromyalgia articles

 http://view.messages.webmd.com/?j=febb1078776d0175&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff8f1d77&ju=fe9113757c67077f74&r=0
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 List of latest Sleep Well articles

 http://view.messages.webmd.com/?j=fec610787067007c&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff5c15797c&ju=fe9413767760027f75&r=0
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 List of latest Chronic Pain articles

 http://view.messages.webmd.com/?j=fec1107870660c7e&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff6c177075&ju=fe9313767767007c70&r=0
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 Welcome to this week's newsletter.  

 This week we are excited to be launching a new series of videos with the clinic team answering your questions!  
To get started, we have three short videos with Alex, answering the questions:

  • What is the difference between ME/CFS and depression?
  • Is it possible to make a full recovery from ME/CFS (and how do we define that)?
  • Should I start with psychology or nutrition treatment?

Read more: http://us5.campaign-archive1.com/?u=fcdfb32950f88900216774c4e&id=1334c65bcc&e=6252891a01

 The videos are all free to view at www.freedomfromme.co.uk/what-is-the-difference-between-me-and-depression
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 Brain study hints at how fibromyalgia works

 Brain scans show that people with the pain disorder fibromyalgia react differently to what others would consider non-painful sights and sounds, new research suggests.
The small new study provides clues to what might be going wrong in the nervous system of people with fibromyalgia, along with possible new approaches to alleviating their pain.
“If we understand the mechanism, we may come up with new and potentially better forms of treatment,” said lead author Marina López-Solà of the department of Psychology and Neuroscience at the University of Colorado, Boulder.

 Read more: http://www.reuters.com/article/2014/09/19/us-health-fibromyalgia-brain-idUSKBN0HE28O20140919
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 Long-Term Opioid Use Can Increase Sensitivity to Chronic Pain

 Many people who have been taking opiates for chronic pain can develop serious problems with long-term use. Some of them may even include an addictive disorder due to prolonged exposure to these very powerful medications. Others develop tolerance to the medication and need ever increasing dose increases. Others develop a condition known as hyperalgesia.

 http://www.freedomfromsufferingnow.com/utility/showArticle/?objectID=65361&proAppName=stevegrinstead
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‘Invisible disease means I can’t do things girls normally do, like go out’ – Fibromyalgia teen Beth Fuller
Beth Fuller
It is only a couple of decades since Fibromyalgia was recognised as an illness. Danielle McGarry speaks to 17-year-old Hull sufferer Beth Fuller during national awareness week for the invisible disease.
Being in constant pain, and so fatigued that even the simplest everyday tasks become mammoth challenges, is bad enough.
For many people with fibromyalgia (FM), however, these things are only part of the battle. Often, one of the toughest things to deal with is the lack of understanding.
"With chronic fatigue-type conditions, sometimes other people will say, 'Oh, well I feel tired sometimes too, you just have to get on with it'," said Dr Kim Lawson, of Sheffield Hallam University's department of biosciences' Biomedical Research Centre. 
"They don't appreciate the severity of it."

 Read more: http://www.hulldailymail.co.uk/8216-Invisible-disease-means-8217-t-things-girls/story-22896718-detail/story.html
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 Trauma and Fibromyalgia — Black and White? Or 50 Shades of Grey?

 Fibromyalgia (FM) is relatively common, with prevalence estimates between 2.0% and 3.5%1​,2,3​. Its prevalence increases with age, up to around age 60 to 70 years; FM is roughly 5 times more common in women than in men4, and is one of the most common reasons for referral to a rheumatologist5​. The etiology and pathophysiology of FM are not well determined, and while there are several extant theories — including muscle dysfunction or misuse, central sensitization, sleep disorders, and altered stress axis function — there is little consistent evidence to support, or refute, any of these. 

 Read more: http://www.jrheum.org/content/41/9/1732.full
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FibCon 2015 Update
Below you can access a letter with information regarding the 2015 Fibromyalgia Conference which will run from Friday 24th - Monday 27th April 2015, at the Chichester Park Hotel, a Booking form and newly designed flyer which you can print off and give to people who may be interested and who have not attended before. At present there are, sadly, no more single rooms left, but there is a waiting list for people who would like to be on standby for one.

 Update letter: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FibCon_2015_letter_14.7.14.pdf

 Booking form: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FibCon_2015_booking_form.pdf

 Advertising flyer: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FibCon_2015_flyer.pdf

 For further details or to book, email Simon: fibcon2015bookings@gmail.com
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 Reminder of CFS/ME/FM Course

 Our next self management course for adults, young people from the age of fourteen, their families and their carers will start on Friday 10th October at The Charis Centre, West Green Drive, Crawley, West Sussex, RH11 7EL

 See poster for full details: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/reMEmber_course_14.10.pdf
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 A personal note from Vicky

Spiky balls are back in stock.
Those that come to my community classes or on a 1:1 basis are very familiar with the delights they offer…  The rest of you don’t know what you are missing!!!  It is my intention to do some more filming over the next few weeks to show you how to use them. 

 Read more: http://us4.campaign-archive1.com/?u=1f0fb2b9eada51a6fa54509ba&id=4e39051738&e=2a0fc40be9
Also:
Education: Benefits of drinking water
Video of the week: The Dart
Success Story: David Such M.Ost
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Daily Newsletter - Sept. 27th, 2014

Daily Newsletter - Sept. 28th, 2014

Daily Newsletter - Sept. 29th, 2014

GMI Weekly 9/30/14

Daily Newsletter - Oct. 1st, 2014

Daily Newsletter - Oct. 2nd, 2014



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I saw my GP on Monday to discuss the results of the blood tests and ECG.  All is 'normal' so I guess my episodes are merely another manifestation of FMS.  So nothing to worry about!

 I wish you well as we begin this last quarter of 2014
Stella

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 N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. 
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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