Hi there
I hope this week has been
a good fone or you. We have had two
family birthdays to celebrate so the good life has been with us, which probably
is not so good for us in reality! Too much food, and mostly the wrong sort! But we had a good time/
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WORDz FOR THE WEEK
114.
To accept change is one of the many challenges in life . . . growing up is another one all together.
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Make FM Awareness Day Memorable.
FREE 2013 May 12 Fibromyalgia Awareness Day
Event Kit!
CARE & Make
Fibromyalgia Visible. We'd
love to support you in creating a memorable event in your community.
That's where your efforts really make a difference. Fibromyalgia events
occur all through the month of May.
This year the NFMCPA
pulled together all of the best tips and advice--plus tools, from the
pros. Putting on an event can be easier with a ready-made kit that
includes a step-by-step check-off list and a Guide
to Creating Local Fibromyalgia Awareness Events for more
time-tested considerations. It's all free and ready to be sent to you!
Can you raise awareness in
your area?
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Curing Chronic FibromyalgiaDebilitating diseases can be devastating, but Monterey, California-based author, Valerie Lumley, is a recovered fibromylagic who has turned her experience with Fibromyalgia into an inspirational tool for others who suffer from the disease. In her book, Curing Chronic Fibromyalgia, she recounts her journey to discover the cause and a cure.
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March
31st, 2013 Newsletter
April
2nd, 2013 Newsletter
April
4th, 2013 Newsletter
April
7th, 2013 Newsletter
April
9th, 2013 Newsletter
April
11th, 2013 Newsletter
April 12th, 2013
Newsletter
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Be an Advocate
In
the Face of Pain® is an
online pain advocacy resource brought to you by Purdue Pharma L.P. In the Face of Pain
provides inspiration, pain-related news, downloadable materials and tools to
inform and empower people with pain, caregivers, health care professionals and
other concerned individuals to take action and advocate for appropriate and
effective pain care. We invite you to explore the resources available. A few of
our most popular resources are listed below. . . . . .
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Helpful Sites For Fighterz
Posted on Leave a comment
When it comes to dealing
with a chronic illness, and this is just my personal feeling, we need all the
help that we can get. And nowadays, there are so many websites out there to
help us keep track of our health, that I think, why not take advantage of them?
I’ve been compiling a list for a few months now, of websites that I think would
be beneficial to not only Fibro
Fighterz, but many other fighterz as well!
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Upon contracting ME/CFS in early 2006 I gave up my somewhat limited
practice of yoga as I felt I was simply too weak to continue and it was doing
more harm than good.
Later, when I learned how
to properly pace myself with a heart rate monitor, I came to understand that the
problem was not with yoga, it was with the way I practiced it. so I resumed
the practice.
In time, and with kind assistance
from very knowledgeable experts, I developed an in-home routine which I could
do daily. I have been astounded at the ever increasing benefits.
http://cfsknowledgecenter.ning.com/group/yogaonthepath
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Misperceived Headache Pain
Q: True or false: Headache pain can be
referred to the head from injuries to the C5, C6 and C7 ligaments.
A:
False. Only the upper cervical ligaments refer pain to the head.
Fig.
1: Supraspinous ligament injury: The ligament at the back of the neck (A) is
torn. Headache pain frequently is referred to the head from injuries to the C2
and C3 supraspinous and intertransverse ligaments. Among the many causes of
headaches and neck injuries, these may be the ones most often misunderstood.
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Researchers tie Gulf War illness to brain damage
Researchers say they have found physical proof that Gulf War illness is
caused by damage to the brain — and that proof may ultimately help civilians
who suffer from chronic fatigue syndrome and fibromyalgia.
Using fMRI machines, the Georgetown
University researchers were able to see anomalies in the bundle of nerve fibers
that interpret pain signals in the brain in 31 Gulf War veterans. The research
will be published Wednesday in PLOS ONE journal.
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Fibromyalgia as a Trait (and a Continuum) Disorder
Because fibromyalgia is a
symptom based disorder, rather than a disease, it ‘officially’ begins when a
person satisfies fibromyalgia criteria and is diagnosed by a physician. Prior
to the 2010 criteria, that meant satisfying the 1990 ACR fibromyalgia criteria
and its requirement of the tender point examination. The 2010 criteria require
only self-reported symptoms that are convincing to the physician. Because the
evaluations required by the criteria are almost never performed in primary care
practice except when fibromyalgia is expected, and then only rarely, there is
no way to know whether a patient had fibromyalgia prior to formal diagnosis. In
fact, some people could have had fibromyalgia for decades—without ever knowing
it: as Ehrlich acidly pointed out, ‘No one has FM until it is diagnosed.’
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Some Videos you might like to watch
Gluten, Grain, & Lectin Free Diet Fox News Interview with Dr Osborne
Gluten Intolerance, nerve damage,
and B-vitamin deficiency.mp4
What GLUTEN was doing to me...
10 Foods NOT to eat
The Truth About Aspartame
http://www.youtube.com/watch?v=OHD9Xqru3NY
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The Fibromyalgia Companion is your guide to managing fibromyalgia symptoms like
pain, fibro fog, fatigue and more so you can live your best possible life.
How? Talking about the latest research findings and providing tips on exercise
(ugh!), behavior change (*gasp!*) and how to get started when you think you
can't or don't know where to begin. Or maybe you are humming along and just
looking for new ideas. Stop by for a while. Learn something new. Reinforce what
you've been doing. And of course, share your own experiences!
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Maybe spring has arrived at last. At least the sun is shining right now!!
Take care of yourself!
Stella
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N.B. I would
like to point out to you that the information in my eNews blog is passed on to you mainly from other
sources. Links are given to the
original articles. I take no
responsibility for their accuracy but freely give them publicity if I think
they might be of interest to my readership.
Sites I refer you to are for
information only. They might conflict in their opinions, they might not
even be medically sound, but I merely offer them for you to peruse and make
your own judgements, accept or reject as you will. Only by reading widely
can we get an overall picture of fibromyalgia syndrome and how we can deal with
its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or
legal nature should always be discussed with a qualified professional.
I also include
various awareness items, benefits issues, as well as general health
considerations. Anyone wishing to
reproduce any of the included items in printed form should seek permission from
the originators.
Wordz for the Week
are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my
personal offering to fibromyalgia sufferers and their carers and is not related
to any other organisation or charity.
If you don’t
already get reminders when each new eNews is posted, please send an email to fmsstella@gmail.com as you will be added
to the emailing list.
I previously sent
out emails as FMSSAS eNews. Past issues
of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog
at http://fmssas-enews.blogspot.com These ceased at the end of November 2012 when
I resigned as a trustee. This blog commenced on 8th December 2012.
Contact me:- fmsstella@gmail.com
