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FMS eNews 14/11/15



WORDz for the WEEK

 247. Your life lies before you like a path of driven snow.
        Be careful how you tread it 'cause ev'ry step will surely show.
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Pacing & Planning: Essential Survival Skills

  I'm going through a particularly tough recovery period after failing to pace myself and having two really busy weeks, so my mind is stuck on what I should have done.
This is the worst time of year for over-doing-it, so let's look at some ways to keep from crashing. Or, at least, to keep from crashing really hard.
 Below, you'll find articles on every-day pacing and planning as well as some on how to deal with the holidays. Even if you don't follow all of the advice, you might be able to pick out a few things that can help you keep going, as much as possible, until January.
 Take care of yourself!
 Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert
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 Sootheze Toasty Collars – A warm hug from a pet
My husband saw this little critter hanging out in our living room and his comment was “I like that cat better than the other two.”  If you are like me and you love cats you might like this one better too. Unlike my other two fickle felines that only want to give me attention when they want something this one will give me a warm (or cold) hug whenever I need it.
This little guy is one of the many Sootheze Toasty Collars that can be used as a hot/cold pack around your neck and shoulders. I enjoy mine as a warm collar mostly.
The great thing about these guys is that they have seams in all the right places so that the filling is distributed evenly. . . .
See Sootheze website


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 6 things that I had to give up in order to move forward
It was just about six years ago that I “got sick” and started feeling my life and my plans slipping through my fingers. I had to give up going to school and pursuing my plan to double-major in Marketing and Pyschology in hopes of focusing a career on market research. I climbed into bed for the next 2+ years and even when I finally began to see my physical health improve as a result of some major life changes, I still had to make some big changes mentally before I could really move forward. I want to share these six things that I had to give up in order to move forward, in hopes that they can help you move forward as well.
Find out what thy were . . . .
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Yes, cold and flu season is just around the corner and this is the beginning of a two part series on boosting your immune system.
Today’s focus will provide some lifestyle and supplemental tips you can use to keep your immune system function high and do your best to keep the cold and flu at bay for yourself.
Let’s first look at some lifestyle tips. . . .

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Dr. Axe’s Essential Oils Guide

 Essential oils are organic compounds extracted from plants with tremendous healing properties. Using essential oils for healing purposes is often called aromatherapy which is a holistic treatment seeking to improve physical, mental and emotional health.
For over 5,000 years, many different cultures have used these healing plant oils for a variety of health conditions. They are often used for relaxation, beauty care, home cleaning and most often used as natural medicine.
Read more . . . and order a FREE eBook at the end of the page.
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This week’s fibromyalgia and ME/CFS news (week of Nov. 9, 2015)

 Hi everyone! I’m publishing an abbreviated version of the news this week due to extra work obligations. I’ll be back with a full-length version next week.
Some highlights:
  •     Early results from the AFFIRM trial of Tonmya, a new fibro drug being developed by Tonix Pharmaceuticals
  •     23 truths that people with fibromyalgia wish others understood
  •     O (Oprah) magazine features a story on ME/CFS
  •     More fallout from the controversial ME/CFS PACE trial
  •     What you're eating could be increasing your fibromyalgia pain
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 High pressure oxygen can effectively treat fibromyalgia

 Fibromyalgia is a disease that is still shrouded in a lot of mystery in the medical community. For sufferers, the constant aches and pains are extremely difficult to deal with. Muscle pain, light sensitivity, and difficulty focusing are all symptoms that fibromyalgia patients express to their doctors.
Until recently, there have not been many studies that have gone in depth to understand fibromyalgia. This has frustrated many people who have long days (and even longer nights) due to the pain. Sure, there are a few ways doctors have tried to treat the pain, but sometimes those don’t work. Pain medications and drugs like Lyrica only work for a few lucky people who find some relief.
Finally, one group of scientists and doctors is trying to find a new way to help… and even heal fibromyalgia pain. Their way? With high pressure oxygen therapy.
Read on . . .
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 Fibromyalgia Doctors

 Part 1 of 5: Overview - Doctors Who Treat Fibromyalgia
People with fibromyalgia see many medical professionals. You may see as many as four or five providers in a single month depending on your:
  •  symptoms
  •  complete diagnosis
  •  other health issues
  •  resources
  •  personal treatment preferences
Knowing the professionals you will come in contact with can help set your mind at ease and decide who can best help you with the management of this syndrome.
Part 2 of 5: Primary Care - Primary Care Doctor
Part 3 of 5: Rheumatologist - Rheumatologist
Part 4 of 5: Psychiatrist - Psychologist and Psychiatrist
Part 5 of 5: Therapist - Physical and Occupational Therapist
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 Promises To Keep: NIH Commits to Reinvigorating Effort on Chronic Fatigue Syndrome
The news had been rumored for months - something big was happening at the NIH. The NIH indeed finally moved on ME/CFS in a big way but exactly how was unclear. Were we indeed in NINDS? Can we expect a major grant announcement (RFA)? What are the next steps?
It took some time but I got some answers. Put up your feet and check out a long blog on the NIH and ME/CFS. What we got. What we didn't get and what (hopefully) we can expect in the future.
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 10 Signs You Have an Autoimmune Disease and How to Reverse It
Autoimmune conditions affect an astonishing 50 million people in the USA alone – the majority of whom are women. Autoimmune diseases are considered a top 10 leading cause of death in women under the age of 65.
Many people don’t know just how many of the serious conditions of the modern age are autoimmune conditions.They come in many different varieties, including rheumatoid arthritis, type I diabetes, thyroid disease, lupus, psoriasis, multiple sclerosis, and more, and can cause many different types of symptoms all over the body that range from mild to severe in nature. But what are they, what causes them, and how can they be treated?
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IBS: why do I have it and how can I control my symptoms?
‘My GP told me I have IBS, is this a serious disease?’ This question is asked over and over again by individuals experiencing digestive problems such as bloating, cramping and inconsistent bowel movements. There are, fortunately, a lot of nutrition tips available on how to control IBS.
So before we dive into the many factors on how to control IBS, let’s grasp an understanding of what this ‘syndrome’ actually is. Irritable bowel syndrome, often referred to as IBS, is not actually a disease. IBS is simply a term used to describe a collection of digestive symptoms present without a diagnosed disease. In essence, IBS can be considered to be a symptomatic mystery with various possible causes. If you have diarrhoea, cramping or blood in your stools, your GP will most likely refer you to a gastroenterologist who can check your gut lining using endoscopy (a camera on a long flexible tube) to look for abnormal growths, inflammation and ulcers; they may also run tests for conditions such as coeliac disease and H.Pylori bacterial infection. If all results prove negative, then you will most likely be diagnosed with IBS – no obvious state of disease, although digestive symptoms present.
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 Misleading PACE claims should be retracted - Campaign created by ME Action
To:  THE LANCET, PSYCHOLOGICAL MEDICINE, AND THE AUTHORS OF THE PACE TRIAL

 Given the weak and flawed methodologies of the PACE trial, which claims that CBT (cognitive behavioral therapy) and GET (graded exercise) led to the recovery of ME/CFS patients, we, the undersigned patients, doctors, scientists, parents, children, family, friends, caretakers and #MEAllies:
– call upon The Lancet to retract the claim made in its February 2011 editorial [1] that 30% of patients, or indeed any patients at all, were said to have recovered in the accompanying Lancet paper on the PACE trial [2]; and retract from that paper all analyses and statements in relation to the absurd “normal ranges” for fatigue and physical function;
http://www.meaction.net/whats-wrong-in-the-lancet
– call upon Psychological Medicine to retract the claims in this paper . . . .
– call upon the study authors to publish the recovery outcomes according to the analyses specified in the trial’s protocol
– call upon all parties to reject the view that being as disabled as patients with congestive heart failure is a good recovery of physical function in CFS.
Read more and sign the petition
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 Fibromyalgia and Cognitive Problems
Managing Cognitive Fatigue
Pain is generally considered the primary symptom of fibromyalgia, but I feel there is another one equal to, if not worse than, pain. That symptom is fatigue.
Now I know everyone has different levels of pain, fatigue, and all the other symptoms, so this may vary from person to person. But the thing about pain is that to a certain extent you can push through it and still get things done. There are pain medicines that can help get rid of, or at least curb, the amount of pain that we feel.
There are topical ointments and lotions that help with pain. Heat and/or cold can help with pain.
But what helps fatigue?  Find out!
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The Brain Boosting and Fatigue Fighting B-12: Hydroxocobalamin
Hydroxocobalamin (hi-DROX-oh-koe-BAHL-a-min) is a natural and uniquely powerful form of vitamin B-12. Clinical studies and practice have shown it can help to improve cognitive functioning, fight fatigue, promote heart health, and more.
Vitamin B-12 is an essential nutrient needed to make red blood cells that carry oxygen throughout the body, the myelin sheath that surrounds nerve cells, and various proteins. It also plays a role in fat and carbohydrate metabolism. Yet, despite its importance to overall health, vitamin B-12 deficiency is relatively common. It is estimated that up to 15% of the general population may be deficient in B-12 - and more among those with chronic illnesses. . . .
Hydroxocobalamin's Relationship to Fibromyalgia and Chronic Fatigue Syndrome
 Many of the symptoms fibromyalgia and ME/CFS patients report are also symptoms of a B-12 deficiency - cognitive functioning problems, memory loss, and fatigue to name a few. Is that merely a coincidence or is there a connection?
 In a 1997 study of 12 patients with fibromyalgia and ME/CFS: Most had little or no detectable B-12 in their cerebrospinal fluid - despite the fact that all had normal B-12 blood levels. Conversely, they had high levels of homocysteine in their cerebrospinal fluid.
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Sleep Well Articles

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I have been amazed at the interest the innocents drinks' Facebook page (scroll down to November 4th) has aroused.  My moment of fame!!!  Almost 43,000 likes to date and must be hundreds of comments. Wish fibromyalgia could get as much attention!

There was a little opposition suggesting that hats should be made for prem babies, not bottles!  So I'm going to do some of those as well from now on.  Having had 3 prem babies myself I can see the need.  There are so many good causes one can work for.  Sometimes it's good not to focus on fibro!!

Fondest wishes to you all
Stella

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or leave your comments below under Post a Comment

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 N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in PURPLE like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation problems, let me know.
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified rofessional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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FMS eNews 07/11/15

A big "Thank You" goes to Jeanne Hambleton for her article in Fibro Flare Magazine .  I am both flattered and humbled by what she has said about me. It is good to know that my efforts are appreciated! Left; photo of my favourite knitting project.
I seem to have gained fame this week as Innocents Drinks have featured me on their Facebook page! 

 To read complete articles on this blog always click on the brown title links and elsewhere where the text is brown.
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WORDz for the WEEK

 245.  The best things in life don't last very long, but they're definitely worth it while they do.
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Helping You Find Pain Relief

  Pain impacts every aspect of your life. It can limit what you do, it can make you distracted or moody, and, when severe, it can make you downright desperate for relief.
 This week, we're focusing on pain relief, starting with a new article on a topical treatment that's long worked well for me, then we'll look at some common medications and supplements -- including what the risks and side effects may be. 
 Take care of yourself, and Happy Halloween!
 Adrienne Dellwo - Fibromyalgia and Chronic Fatigue Expert 
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Study Shows Stress Increases Pain in Fibromyalgia

“Stress exacerbates pain in the everyday lives of women with fibromyalgia syndrome” – This title for a recent study has a serious “duh” factor attached to it. 
I think anyone who lives with Fibromyalgia or near a woman (or man) with Fibromyalgia could tell you that stress increases pain in Fibromyalgia. It’s certainly true for me. Surely, this study by Fischer et al. has to tell us something we don’t know, so let’s take a look.
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 Chronic Illness Inspires

 Sharing is Caring! Originally posted on Prohealth 
Often chronic illness seems to zap us of our inspiration, but that’s not always the case. Many of us discover new passions and hobbies after we are diagnosed with chronic illness.
Sometimes, chronic illness inspires. While our illness may have taken one hobby we loved away we find ourselves engaged in new hobbies, and in new ways of being inspired. For some of us it is photography or art, for others it is gardening, knitting, or even writing.
[For me it's knitting and creating this blog!]
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7 Steps of Hope, Healing From Chronic Illness - A Conversation with Nancy Gordon
Nancy Gordon was an enthusiastic Licensed Clinical Social Worker when suddenly she was hit with a devastating illness that was not diagnosed for many years. 
And even when it had been diagnosed, there was no adequate medical treatment, so she knows firsthand what it is like to descend into the depths of disability.
Her combined personal experience of chronic fibromyalgia and traumatic brain injury has given rise to her passionate mission in life – to assist others on the journey of transforming one’s life while living with the challenge of illness and disability. Along the way she discovered a breed of dog, the Xolo, which for many centuries has been shown to have sacred and healing powers.
In today’s conversation you will learn of her inspiring Journey through devastation and disability to become a beacon of hope and healing. We will explore the seven steps of hope that she describes more fully in her guidebook, “7 STEPS OF HOPE Healing the Emotional, Mental and Spiritual Impact of Chronic Illness and Disability”.

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 This week’s fibromyalgia and ME/CFS news (week of Nov. 2, 2015)

 Hi everyone! Here’s this week’s fibromyalgia and ME/CFS news roundup. Some highlights:

  •     ME/CFS community explodes in anger after Oxford University study finds “positive thinking and exercise” can heal ME/CFS
  •     Lyrica tablets found among kid’s Halloween candy in Canada
  •     FDA (U.S.) approves new opioid pain patch
  •     National Institutes of Health (U.S.) announces new ME/CFS research effort
  •     Using Lyrica rectally for neuropathic pain
  •     National Health Service (U.K.) opens a new fatigue clinic
  •     An author says his children's book will help you fall asleep
  •     Walmart launches free grocery pick-up service at some stores
  •     Free ebook: Eating Well on $4 a Day
  •     Plus research news, interviews and much more!

Please share this post with your fellow fibro/ME/CFS friends or groups if you find the content valuable. 
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Fibro Flare Magazine - November 2015 - Issue 19.
OR PDF version

 [I am honoured that the article about me by Jeanne Hambleton is included in this issue.  As she said, I work in the background, so such an accolade is quite embarrassing!  You can find it on pages 30-34. But the rest of the magazine is interesting too!]
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 Vote for Fibro Flare Magazine in Galaxy Hot Chocolate Fund Competition
Please vote and share. The £300 means we can send awareness booklets and letters to all Clinical Commissioning Groups in the UK. Support us so we can help you.  When you vote you will then have to go to your e-mails where you will get a link to verify the details. Your vote does not count unless you click the link in the e-mail. Please help us - £300 is a fantastic amount of money for us. 
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 Use of AMPK Inducers and Metformin for the Treatment of Fibromyalgia 

 The present invention relates to the use of metformin, metformin derivatives, compounds containing metformin and compounds that induce the activation of AMPK phosphorylation for the treatment of fibromyalgia, reducing pain and depression, as well as dysfunctional biological parameters. 
The primary sectors of application are the pharmaceutical and medical sectors, through the development of tablets with lower doses than those currently used for these patients.
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Spectrum Disorders: Are Fibromyalgia, ME/CFS, Anxiety, Joint Hypermobility, Migraine and Asthma Related?
Jeremy Coplan isn't afraid to think big - and he's clearly tired of the pigeonholes researchers have put diseases into. If you're going to understand the human body, he thinks, you have to look at the big picture - and he has.
Can you envision a disease spectrum that includes FM, ME/CFS, Ehlers Danlos Syndrome, hypothyroidism and asthma? He can.
Find out more.
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If Physical Injury Does Not Trigger Fibromyalgia - What Does?

 Physical trauma such as car accidents are often assumed to trigger FM but a recent study suggests that that's not so at all. In fact, some researchers believe painful events play no role at all in triggering FM.
Is that possible, and if it is what the heck is going on? Find out more and tell us how your fibromyalgia started.

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Characterized by redness, swelling, and pain, inflammation is the body's autoimmune response to harmful or threatening stimuli. Inflammation is likely to occur when the body comes into contact with toxins, allergens, and microorganisms, many of which are a normal part of everyday life; as a result, most people experience mild inflammation from time to time. When inflammation becomes more frequent than normal, the body is at risk for chronic inflammation which may result in tissue damage. To reduce the risk of tissue damage, experts recommend that sufferers of chronic inflammation seek medical care or advice. While prescription medications are commonly used for inflammatory conditions, a number of options exist for those who prefer natural treatments. Alternative and complimentary treatments include dietary and lifestyle changes, homeopathic remedies, herbs and supplements. Studies have shown that certain herbs--such as those described below-- may help to treat a range of inflammatory disorders, including rheumatoid arthritis. Here, then, in no particular order is our list of herbs considered beneficial for inflammation: - See more at: http://www.herbs-info.com/anti-inflammatory-herbs.html
10 Anti Inflammatory Herbs Turmeric (Curcuma longa)

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Curcumin Made 65X More Bioavailable - Modern Take on a "Golden" Spice Busts Brain Fog, Joint & Body Pain
Have you had a "Fibro Fog" day lately? Hazy focus, slow thinking and spotty memory can be frustrating when you’re trying to take care of business. What about a "joint and body pain" day? Morning stiffness, creaky flexibility and muscle aches make it hard to get up and go. 
Of course, for fibromyalgia and CFS/ME sufferers, on the worst days these brain and body complaints combine - diminishing work performance, day-to-day activities and overall quality of life. 
Turmeric, a legendary "Golden Spice," may help. Used for thousands of years in both Ayurvedic and Traditional Chinese health systems, turmeric’s active compound, curcumin, has been shown in scientific research to have multiple biological activities that may sharpen mental performance while soothing away muscle aches and joint discomfort. 
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 UK Fibromyalgia November 2015

 Every month we collect all the relevant fibromyalgia research from around the world so that you can keep informed about your condition. As well as this email newsletter, we also produce the original and independent Fibromyalgia Magazine which is available in a print format or in a more cost effective digital format,which is ideal for international readers.
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 Anxiety and Depression - Dr Edmond O'Flaherty - Medical Director 

The Bio Balance Centre is led by Dr Edmond O'Flaherty. We offer successful treatment of depression and anxiety through comprehensive blood analysis to determine chemical imbalances.
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There are so many memorable days at this time of year.  We've had All Souls and All Saints (incorporating Hallowe'en), Bonfire night (for Guy Fawkes, Remember, remember the 5th of November) and Remembrance Day, 11th (for those who fell during the 2 World Wars, & others) is this week.  May they all be remembered, for various reasons. 

Have a good week
Stella
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or leave your comments below under Post a Comment
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 N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in PURPLE like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation problems, let me know. 
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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