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FMS eNews 17/01/15

It's apology time again.  The laptop is still sick and not performing properly, so it's gone in for another checkup. 

Also, I had a hospital appointment yesterday which I wasn't notified about until Thursday!  This cut my working hours considerably.  Here goes with what we have . . . .
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WORDz for the WEEK

 205.  Even if you know where 'the treasure' is, you still have to dig it up; you don't really think that it will 'un-dig' itself, do you?!
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From  Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

 You see it all the time - statements about fibromyalgia pain including "mysterious" or "poorly understood." When I first started researching this illness, those things confused me. After all, I was finding a ton of information! Take a look at what we do know about fibromyalgia pain and why it's not so mysterious after all. That's below.
Also this week, a heat-therapy device for our pain, and the unconventional way the manufacturer is trying to fund research.
After that, up top and down in Featured Articles, we'll explore many aspects of pain and pain treatment. On the right, you'll find a review of goal setting, in case you're wobbling on those resolutions.
Take care of yourself!
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 Living Well with Fibromyalgia – Invisible Tears

 For those of you who haven’t seen it, the last issue of Living Well with Fibromyalgia is now available to the general public. For next time, however, you can have it delivered to your inbox by subscribing for free. But, that’s not the reason for this post…
The next issue of Living Well with Fibromyalgia will be out March 1st with the theme: Invisible Tears. I chose this theme because it resonates so deeply with me, as I know it will with so many of you. Would YOU like to be a part of it?
I’m looking for people to contribute (people like you) to the March issue. You can contribute poetry, photos, articles and/or stories. Articles and short stories must be under 800 words. All contributions must fit within the Invisible Tears theme.
I also ask that you send me a short biography about you and a photo (as well as any pictures you’d like to accompany the story). If you have a blog/website and/or Facebook page, I am able to link the piece back to you.
So, if you would like to see your name and work in virtual print, please send your contributions to
contributions@fibromodem.com by February 1st 2015.
I can’t wait to start reading what you have to write!
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Jarred Younger on his New Chronic Fatigue Syndrome and Fibromyalgia Lab 

  Jarred Younger dazzled attendees with his leptin and chronic fatigue syndrome presentation at the Stanford Symposium earlier this year.  His pilot study that measured dozens of inflammatory markers every day in chronic fatigue syndrome patients produced one of the most visually startling graphics I’ve ever seen – an “all roads lead to Rome” type of plot that showed an array of immune factors converging on one… the putative trigger of them all: leptin.
 (See the video here.)

 Deborah Waroff Talks to Jarred Younger

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ME/CFS Community

 Check out InTheNews for daily updates on the latest medical news releases and other news items which may be of particular interest.

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 Practical Information, Guidance & Local Resources for those affected by ME/CFS

 Our mission is to provide those afflicted with Severe Fatigue, Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM) and related illnesses with a variety of resources from around the world with which to deal with these complex, and all too often, misdiagnosed conditions.
Our goal is to provide assistance on each individual's path towards wellness with particular focus in three areas:
Find out what they are:
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Ten Foods that wreck your Immune System

Get Your 7 Page Free Report on the 10 Foods That Wreck Your Immune System... and Discover a Secret Nutrient (That Cures cancer) we've been Throwing Into Trash!

 Just let us know where to send it!
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 'Wow'

 Last year was amazing and this year has already started with a bang!
11 years ago I needed a little something for me, you know something I could do in my spare time.This little something has been the most amazing journey, I've met some lovely people along the way and made some fantastic friends. I've had the pleasure of helping people feel better and grow in confidence!
Hand on heart I can honestly say that I love it and wouldn't change a single moment!
Want to know more about me? then read my story.
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 A personal  note from Vicky

 The picture is of me at a recent ongoing training day.  I have been a Body Pump instructor for 11 years and although I don’t teach it regularly now, I do participate.  In the picture are two instructors I respect.  Sally Brown on the left who first brought me to the front of the class to demonstrate a move when she was injured (and I rather liked it) and on the right Lu Mays who taught the very first class I attended.
Also:
Education: Gluteal Amnesia
Video of the week: Oyster
Success Story: Helen Warwick
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Did you know you can add your comments about this page in the Comments box at the end of this blog?  Please feel free to use it and to comment on comments!
Take care
Stella

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 N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome  and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

Posted by No comments:

FMS eNews 10/01/15



Technical problems this week necessitated a Health Check which meant my laptop was out of action for a few days.  Working on the PC for any length of time does my back no favours so the blog is a bit limited.  However, I have managed to include most of the usual features.  Computers are a mystery!!
Don't forget, the links are now in the BROWN titles.
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WORDz for the WEEK

 204. Life is a mystery to be embraced and enjoyed; not merely a plethora of problems needing to be solved.
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 Whether it's a New Year's Resolution or an on-going struggle, I know many of us are hoping to lose weight in 2015. Get a look at some of the unique challenges we face and see what may help us out ... down the road, at least.
Also this week, setting goals that you can actually reach, in spite of your symptoms; and some things to do and not do. Down in Featured Articles, it's all about diet and exercise and how to improve both without sending yourself into a massive flare. On the right, ideas for getting and staying organized, no matter how foggy your brain may be.
Start the New Year right by taking care of yourself!
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 Palm Challenge

 Announcing Fibromyalgia Palm Challenge to raise awareness have created the Fibromyalgia Palm Challenge with a purpose to make the world understand Fibromyalgia  (FMS) and the people  suffering from it, and to help people get diagnosed in time. People with this syndrome suffer with everything from 24x7 chronic pain to hypersensitivities, from cognitive dysfunction to inability to lead a normal life, but more importantly, they suffer from lack of awareness. The most painful thing is to explain to people what they are going through. Since, people with this chronic debilitating illness do not look sick, they end up facing lot of indifference and harsh comments.

With this little challenge, I aim to raise awareness on a larger scale. There are no donations involved and the steps are really simple. People taking the challenge just need to read and understand what Fibromyalgia is all about. Not only will it result in a better understanding of the syndrome, it will hopefully bring relief to millions of fibromyalgia patients who are tired of explaining to people what they are going through. 
See also
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Health Rising Requests Your Assistance in Choosing a Logo 
As part of our goal to create a more professional appearance Health Rising has engaged a logo designer to produce a logo. Please let us know which of the following logos you think would be the best for Health Rising.
Please feel free, as well, to provide suggestions for changes with regards to colors, fonts, words or other parts of the design.
The results will help but will not necessarily determine what the final choice is. (I reserve the option of bucking public opinion :))
Six logos are provided.
Thanks for your help!
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Beating the Bloat: FODMAPS – the Best Diet for Irritable Bowel Syndrome 
The holidays are over. If you have irritable bowel syndrome (IBS), however, that holiday infusion of good, rich food may have left your gut bloated, gurgling, gassy, stopped up, or loosened up at some point.
IBS is a complex disorder that researchers are still learning about, but they’re pretty clear that four factors play a role: hypersensitivity reactions, increased gut transit time (motility), higher than normal amounts of fermentation, and malabsorption of sugar.
Developed by Peter Gibson and Susan Shepherd at the University of Melbourne, Australia around 2000 and published in 2009, the odd-sounding FODMAPS diet addresses two of these factors: fermentation and sugar malabsorption.

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A Fibromyalgia Patient’s Ten Strategies for Healing - By Darden Burns on January 4, 2015

 I am weary of reading about studies on the cause of fibromyalgia pain. Theories about altered pain perception, disordered sleep and immune dysregulation, etc might be interesting to a medical scientist but they are not particularly helpful for a person suffering from fibromyalgia.
What is needed is a list of strategies that are helpful for patients keeping in mind that each person is unique and what might help one person may not help another. There are no absolutes when it comes to health and this is particular true of complex conditions such as fibromyalgia and chronic fatigue syndrome.
My suggestions are based on my personal experience of living  with fibromyalgia pain for twelve years and ultimately finding treatments that resulted in significant reversal of my symptoms, communicating with others from my blog “Fibro Friends” for the past seven years, and sharing information with other patients I met at a fibromyalgia clinic where I spent three months.
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13 Ways To Improve Your Health In 60 Seconds Or Less

If you're the type of person who is constantly wondering where the day went, you probably just about jumped for joy at the recent study that found that just one minute of intense exercise (during an easy 10-minute workout) could improve health.
While that doesn't mean you should give up your lengthier workouts in favor of mere minutes of activity, it does add some strength to the comforting belief that every little bit counts.

And perhaps the best news of all is that it's not the only way in which you can improve your well-being in 60 seconds or less. Here are a few other ways to boost your health in just one minute.
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 200+ Symptoms of Fibromyalgia and Common Coexisting Conditions
Fibromyalgia is a syndrome with many symptoms. Each individual with Fibromyalgia will have some of the symptoms. A few people will have all of the symptoms, but not everyone with Fibro has the same symptoms or even has symptoms all of the time.  Also, symptoms may vary from day to day, year to year, or even minute to minute for each person coping with Fibromyalgia and other  common coexisting conditions as well.
How confusing is that? Well, it gets even more confusing!  
Find out how!
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Juvenile Fibromyalgia Support 

 Juvenile Fibromyalgia Support is a group for young people and their families so they can connect with others fighting this painful and under recognized illness. Everyone is welcome however I ask that we all come to the group with love and compassion in our hearts as well as the understanding that many of us will have bad days and might say things you may not agree with. 
Instead of starting an argument, acknowledge the bad day and offer your support. That is why we are here. Come on a bad day and we'll be here for you. Please also remember to come on a good day and offer your support in return. Thank you, from the group admins. 
Love and light to you all. x
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 UK Fibromyalgia

 Welcome to the January 2015 UK Fibromyalgia Research  Newsletter
Happy New Year!
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 New studies find causes of fibromyalgia, offer hope of relief

 Two new studies on fibromyalgia focus the problem on the thyroid, pituitary and hypothalamus, and suggest new avenues of relief for sufferers.
Research from the Fibromyalgia Research Foundation reveals deficient thyroid hormone regulation (DTHR) as an underlying cause of Fibromyalgia (FM). Poor diet, poor physical fitness and metabolism slowing drugs are primary contributors to symptoms as do additional hormonal imbalances of cortisol, estrogen and progesterone.
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 Behind Perception, Free Exhibition
If you are able would you please support this amazing project by promoting, attending, asking colleagues, friends and family to come along and view 'Behind Perception.' 
Sufferers with ME/CFS have participated in turning their ME/CFS by focusing on two contrasting portraits of a person with ME/CFS we hope to show the difference in how someone can look as opposed to how they feel. please support by popping along to the Exhibition free admission 15th-28th Jan, 9am-9pm, Hamilton House, Stokes Croft, Bristol, BS1 3QY
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 A personal  note from Vicky
I hope you all had a great Christmas.  I have certainly enjoyed the break and come back feeling refreshed.  It was lovely having so many of you join me for the Christmas meal at Pizza Express.  I appreciated the kind words spoken on your behalf by Jane at the meal and have done as instructed and not spent the money you gave me on another flashing Christmas jumper! 
I have though put it towards the signet ring with my name in Chinese Characters that has been beautifully reconstructed at the local jewellers James Stephens.  I had the original made during my time when I served in Hong Kong with the army and it’s quite special to me.  Read more.
Also:
Education: New Years Resolutions
Video of the week: Exercise to release tension in the upper back
Success Story: Jeni Webb
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 As I sign off the sun is streaming through the window.  The rise in temperature recently is a welcome change from the cold and frosty mornings we have been suffering.  It is a change from SAD to GLAD.  
I hope it is making you feel better.
Luv and best wishes Stella
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 N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources.  Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

Posted by No comments:

FMS eNews 03/01/15

 2015 is here!


I promised something of a 'New Look' for the 'New Year'.  Well, we have new dividers (purple) and I am making the links mainly in the title instead of at the end.  Links appear in brown.  Headings in purple are not links. I hope this works for you.  Email me if you have any problems.
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WORDz for the WEEK

 203.  The best gift you can ever give to people is to make them feel at least as special as they are.
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From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome


I hope you had a Merry Christmas!
Once the holiday is over, it's time to take it easy for a while, right? I know that's what I'm doing! It's also a good time to reflect on the past year and start looking forward to the next. So let's take a journey back through 2014, with an article selected from each month.
Take Care of Yourself!

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Operation Affirmation – by Purple Law Lady
Affirmations are a way for us to harness the mind's power by directing our intentions toward our best selves and our happiest lives.  Say this phrase to yourself all day long. Write it down, email it to yourself, and post it where you will see it all day.

 Day 28 - I project love to everyone I meet
Day 29 - Happiness is a choice  
Day 30 - I love and aprove of myself
Day 31 - The past has no power over me any more

Love your day, love yourself, love your life!
Say good-bye to the past and hello to the future:
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To Affirm or Not To Affirm – A Question - By Purple Law Lady

So, after 31 days of affirmations, are you feeling empowered? Reassured? Are you on the way to relinquishing your fears and purging your anger, predicting your own future and living up to your potential?
Or (and be honest) did you find yourself reading the affirmations and feeling all sorts of angry? Feeling forced into positive thinking?
Okay, so it doesn’t work for everybody: it floats some people’s boats and, for others, it has more of a torpedo effect!
Megan Bruneau, from MindBodyGreen, has created a list of reminders (call them whatever you wanna call them), that actually help her live her own best life:
See what they are

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Top Discussions

 As we ring in the New Year, we'd like to take stock of the last 12 months and thank you for creating such a rich repository of engaging discussions, honest treatment reviews, and health data that will benefit research for many years to come. Here are some of the recent highlights that you might have missed:

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All the best in 2015 

 From everyone here at PatientsLikeMe, we wanted to send you our best for 2015.
Next time you come to visit the community, just click on anyone's profile and leave a comment or send a private message wishing them a Happy New Year, too. It's the little things that can make someone smile ?
Better together,
The PatientsLikeMe Team

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Best of 2014 Edition

 Wellness HealthWatch, December 31st, 2014

 1. Flu Attack! How a Virus Invades Your Body
It's flu season. Dr. Mercola has some suggestions for boosting your immune system and protecting yourself against flu naturally.
Plus many other top articles.
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Supplements & Symptoms: 2014's Top Research and Wellness Articles 

 As a health-information seeker you see so many articles about nutritional supplements that it's sometimes hard to remember which ones can be beneficial for what. This overview of recent research publications, organized roughly by key symptoms, may help put it in perspective. 

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 Neurontin and Lyrica are a Death Sentence for New Brain Synapses
Neurontin and its newer more potent version, Lyrica, are widely used for off-label indications that are an outright flagrant danger to the public. These blockbuster drugs were approved for use even though the FDA had no idea what they actually did in the brain. A shocking new study shows that they block the formation of new brain synapses1, drastically reducing the potential for rejuvenating brain plasticity – meaning that these drugs will cause brain decline faster than any substance known to mankind.

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Fibromyalgia Articles

 Chronic Pain Articles 1

 Chronic Pain Articles 2

 Sleep Well Articles
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 Fibromyalgia Articles?

 A while back, I suggested that someone might like to raise the profile of fibromyalgia by contributing to Contributoria.  Well, here's the Jan edition and I've looked through the titles, and the titles for December, and the titles proposed for February and not a mention of fibromyalgia did I find!!  Come on now!  There must be budding, active or retired journalists reading this who could do an admirable piece on the subject, so what about it?  Who's prepared to have a go?    S.
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A personal  note from Vicky
I wish you all a Happy new Year!  I hope 2014 has been as good for you as it has been for us. So as the new year approaches are you ready to get get going again? Classes will resume on Monday 5th January.  The early class on a Monday evening will change to 5.30pm due to popular demand. We now run nine classes a week in Three Bridges so there is plenty of choice. Please spread the word about my unique style of Pilates! One of the articles below explains why my pilates classes are different to straight forward Pilates.
Also:
Education: A collection of top 6 best articles from the last 12 months. ENJOY!
Video of the week: Pilates Mobilty. Please dont seize up, feel free to share!
Success Story: David Such M.Ost
Registered Osteopath Bodycare Clinic K2 - See more.
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Nicola's Note
Hello everyone,  We are soon to welcome in 2015. It's great to be able to look forward to a whole year of Tai Chi, Qigong and meditation. I am currently putting together the 2015 workshop schedule, where a few old favourites will be returning. In 2015 my classes will now focus around the Horsham and Faygate areas, which opens up more possibilities to come. Please view over the January 2014 calendar and the schedule here. Thanks for reading and I look forward to another fantastic year of training, teaching and learning ahead.
Regards, Nicola.
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Are you making New Year Resolutions?  Do they work?  Or are they vague promises to yourself?

Unless they are going to genuinely benefit your health or welfare, or someone else's, then forget the idea. Being half-hearted helps no-one.
Stella

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 N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

Posted by No comments:
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