Search This Blog

FMS eNews 06/09/14

National Fibromyalgia Awareness Week begins this weekend.  I hope you are doing something to raise awareness.  I have learnt of a third group's activity.
Fibromyalgia in Tonbridge Support Group for West Kent are raising awareness with a stall in the foyer of ASDA - Kings Hill, on Saturday 6th September (today),  10am – 4pm.  I wish them well.
<><><><><><><><><><><><><><><><><><><><><><><><>

WORDz for the WEEK

 184.  When we are motivated by goals that have deep meaning; by dreams that need completion; by pure love that needs expressing, then we truly love life.
<><><><><><><><><><><><><><><><><><><><><><><><>

Email Scam - "Terrible Situation"

 Last weekend Jeanne Hambleton's computer was hacked.  A message was sent to all her contacts (from a false email address) asking for financial assistance because she had been mugged in Kiev, Ukraine whilst on holiday.  Of course it was a scam and might have been ingnored, but in the process her contacts list was wiped clean so she has lost all her email addresses.  If you are in the habit of receiving messages from her, about FMSSES, FibCon, FollyPogs, or in any other capacity, then please email her so she can rebuild her database.  Otherwise she will not be able to contact you again. Thank you for your co-operation in this matter.  Please send your email messages to chair@fms-sas.co.uk
<><><><><><><><><><><><><><><><><><><><><><><><>


From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

 We've all been there - one moment your brain is clear and working just fine, and then the fog rolls in and you struggle to do the simplest things. Could it all be due to messed up blood-flow patterns? Maybe. See the latest research, below.
Also this week, a look at some of the bad advice we get and how you can respond to it. Down in Featured Articles, I'm going to be obnoxious just like the stores and dive into the holidays! I've got a better reason than they do, though - I want you to get a jump on it so you aren't wiped out before the Black Friday sales even begin.
A quick note: The format change I've been talking about is now a reality for this page. Things will look different to you, but it's still the same site.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/3053fb960f000145730031ae.htm
<><><><><><><><><><><><><><><><><><><><><><><><>


 From Shereen Lehman, MS, your Guide to Nutrition 

 A list of related articles.

  •  Do These 5 Non-Food Things to Improve Your Diet
  •  5 Swaps to Make Your Kid's Bag Lunch Healthier 
  •  Seven Untrendy Superfoods
  •  5 Tips for Buying Dietary Supplements

http://specials.about.com/service/newsletters/nutrition/3b5401e75a0001eed300813c.htm
<><><><><><><><><><><><><><><><><><><><><><><><>

System Reset: New Way To Reduce Fight or Flight Response Found 
We just saw that some Japanese ME/CFS researchers believe they may have developed an objective test to measure post-exertional fatigue.  Heart rate variability tests indicated that fatigue after a cognitive test is associated with reduced parasympathetic nervous system (PNS or ‘rest and digest’ system) functioning and increased sympathetic nervous system (SNS or ‘fight or flight’ system) functioning.

 Read on: http://www.cortjohnson.org/blog/2014/08/29/system-reset-reduce-fight-flight-response/
<><><><><><><><>

 “A Sweet Retreat”: Meditating While Having Chronic Fatigue Syndrome – A Meditator Returns
I learned to meditate in 2007 and developed CFS in 2011. In the three years in between, I participated in some 20 retreats of 2 to 14 days in length. Yes, meditation is addictive (in the best way possible). Yet since I became sick, I’ve mostly discarded meditation as just one more activity that requires more mental resources than I have available.
Research indicates meditation and mindfulness exercises have real health benefits and they can turn down the flight/fight response that appears activated in ME/CF and FM
I recently rediscovered meditation, though, and am excited to share with you the palpable and scientifically validated benefits of meditation, from improved concentration, better emotional health and reduced pain sensitivity to increased energy and more

 Read on: http://www.cortjohnson.org/blog/2014/08/31/sweet-retreat-meditating-chronic-fatigue-syndrome-meditator-returns/
<><><><><><><><>

 Fatigue Explained? Japanese Assert Brain Damage Causes Fatigue in Chronic Fatigue Syndrome 
A Central Nervous System Hypothesis of Chronic Fatigue Syndrome
“… neurophysiological and neuroimaging studies in combination with subjective or a newly developed objective evaluation method of chronic fatigue have begun to clarify the  mechanisms underlying chronic cognitive fatigue …”

Deciding that ‘chronic  fatigue’ had become not just an illness problem but a productivity concern for their economy, the Japanese initiated a program a couple of decades ago to understand and treat it. They note that a third of the Japanese population complains of  “chronic fatigue” and that “chronic  fatigue” contributes to cardiovascular conditions,  epilepsy, and early death.  Their program has encompassed all levels of fatigue from chronic fatigue to chronic fatigue syndrome. We’ve missed out on a lot of their work focused on fatigue because it doesn’t show up in searches for Chronic Fatigue Syndrome (ME/CFS).

 Read on: http://www.cortjohnson.org/blog/2014/09/03/fatigue-explained-japanese-brain-damage-chronic-fatigue-syndrome/
<><><><><><><><><><><><><><><><><><><><><><><><>


 Wellness HealthWatch, September 3, 2014

 Do Gut Bacteria Rule our Minds? 

 In an ecosystem within us, microbes evolved to sway food choices, leading to preferences, cravings, and, possibly, obesity. 
In an article published this week in the journal BioEssays, researchers from UC San Francisco, Arizona State University and University of New Mexico concluded from a review of the recent scientific literature that microbes influence human eating behavior and dietary choices to favor consumption of the particular nutrients they grow best on, rather than simply passively living off whatever nutrients we choose to send their way.

 Read More » http://www.prohealth.com/library/showArticle.cfm?libid=19156&B1=EG090314&utm_source=EG090314&utm_medium=em&utm_campaign=Wellness

 Other articles: http://www.prohealth.com/eg/EG090314/index.cfm?lvor=12015.1166091.0.1.0.110434
<><><><><><><><><><><><><><><><><><><><><><><><>

Attacking Fibromyalgia Pain with Vitamin D
You wouldn’t think one of the richest countries in the world would need to worry much about nutritional deficiencies, but the truth might surprise you. Many Americans suffer from some form of nutritional deficiency – such as iron or magnesium deficiency (both of which share many of the same symptoms as fibromyalgia). Among the various nutritional deficiencies plaguing Americans, there is one in particular that has seen a startling increase in recent years – vitamin D deficiency.

 Read on: http://fibromyalgiatreatmentgroup.com/fibromyalgiatreatment/attacking-fibromyalgia-pain-with-vitamin-d
<><><><><><><><><><><><><><><><><><><><><><><><>

List of Fibromyalgia articles.

 http://view.messages.webmd.com/?j=feb710757d630d7a&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff8d1d79&ju=fe9013727265027a74&r=0
<><><><><><><><>
List of Chronic Pain articles

 http://view.messages.webmd.com/?j=fec910767561037d&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff6a177077&ju=fe8e13727c61077877&r=0
<><><><><><><><><><><><><><><><><><><><><><><><>


 The Patient Voice- Fibromyalgia member Becca shares her story
What does sharing about health experiences and donating data for good mean to her?
“I’m hoping that my contribution is going to help others who come behind me who have these conditions have an easier time of it.” -Becca

 http://blog.patientslikeme.com/2014/05/28/the-patient-voice-fibromyalgia-member-becca-shares-her-story/
<><><><><><><><><><><><><><><><><><><><><><><><>


 Press Release 
Elevated Suicide Risk in People with Fibromyalgia 
Published on Friday, 05 September 2014

 Fibromyalgia is known as a condition that is not life threatening but the suicide potential is not considered.
How many lives have to be taken?  How many families destroyed before the necessary attention is paid to this life-changing condition?
In the UK, information about how many people with fibromyalgia have been diagnosed is not collected and a recent question by an MP about how many were receiving benefits was deemed too expensive to collate.

 http://www.fmauk.org/latest-news-mainmenu-2/press-releases-mainmenu-37/935-elevated-suicide-risk-in-people-with-fibromyalgia
OR read it on Facebook: http://t.co/iUz7ZfHaqC
<><><><><><><><><><><><><><><><><><><><><><><><>

Living Well with Fibromyalgia, September 2014 - SUCCESS
So you may remember that I was feeling (just a tiny bit) down at the end of the last issue? 
Luckily for me, Melissa Swanson (from This is My Life ~ Surviving Fibromyalgia) picked up the reins and organised our great team of writers into producing a SUCCESSful issue of LIVING WELL with FIBROMYALGIA. 

 Read the magazine: http://fibromodem.com/september-2014/
<><><><><><><><><><><><><><><><><><><><><><><><>


 Whole-body vibration may reduce pain associated with fibromyalgia

 Whole-body vibration exercise effectively reduced the severity of pain in patients with fibromyalgia, according to study findings.
“Our findings are promising, but it is not entirely clear whether these improvements were the result of added vibration or just the effects of being more active,” study author Anthony S. Kaleth, PhD, associate professor at the School of Physical Education and Tourism Management, Indiana University-Purdue University Indianapolis, said in a press release from the American College of Sports Medicine annual meeting.

 Read more: http://www.healio.com/rheumatology/fibromyalgia/news/online/%7Bf4391cab-209b-4b4d-aab0-9561e1713888%7D/whole-body-vibration-may-reduce-pain-associated-with-fibromyalgia
<><><><><><><><><><><><><><><><><><><><><><><><>

Brain Drainers 
Always losing your keys? Lack of sleep, certain meds, and even what you eat can impact your memory. Give it a boost by learning these 12 things that affect memory and what to do about them.

 Read more: http://ebm.cheetahmail.com/c/tag/hBUBgvdBFYNexB88FNKNuI7pB5j/doc.html
<><><><><><><><><><><><><><><><><><><><><><><><>


 Newsletter September 2nd 2014

 Welcome to this week's newsletter.  We are very excited to be announcing the next Secrets to Recovery LIVE on Monday 8th September at 6-6:45. This week's guests are Sue Hughes, sharing her recovery story, and Jess Thompson from the psychology team talking about the 3 stages of recovery.

 Read more: http://us5.campaign-archive2.com/?u=fcdfb32950f88900216774c4e&id=14d5eaee11&e=6252891a01
<><><><><><><><><><><><><><><><><><><><><><><><>


 Latest Articles

  •  Analgesics Drive Medication-Overuse Headaches
  •  Case of Large-Scale Opioid Diversion Puts Hospitals on Alert
  •  DEA Ends Investigation of Pain Doctor
  •  Experts Say Cannabis for Pain Requires Better Science

See these articles: http://campaign.r20.constantcontact.com/render?ca=5b019eb9-c719-44c8-b030-b6666fbca230&c=68d875f0-0487-11e4-b3c3-d4ae527536d1&ch=68dd30e0-0487-11e4-b3c3-d4ae527536d1
<><><><><><><><><><><><><><><><><><><><><><><><>


 Cultivate an Open Heart 
"This can make a real difference in our lives." 
I believe that every human being has an innate desire for happiness and does not want to suffer. I believe that each of us has the same potential to develop inner peace and thereby achieve happiness and joy. If one has a positive mental attitude then, even when surrounded by hostility, one will not lack inner peace. On the other hand, if one’s mental attitude is more negative, influenced by fear, suspicion, helplessness, or self-loathing, then, even when surrounded by one’s best friends, in a nice atmosphere and comfortable surroundings, one will not be happy.

 http://view.s4.exacttarget.com/?j=fe9411717763027f71&m=fe9515707360067a73&ls=fde9107272630d7474107876&l=fef11d757c6304&s=fe21117974640d78761c76&jb=ffcf14&ju=fe5c13707067017a7316&r=0

 See more items at: http://spiritualityhealth.com/articles/cultivate-open-heart
<><><><><><><><><><><><><><><><><><><><><><><><>


 NEWSLETTER – August/September 2014
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Tonbridge_FM_News_14.08-9.pdf
<><><><><><><><><><><><><><><><><><><><><><><><>

A personal  note from Vicky
The Norfolk coastline taken by my husband on bank holiday weekend.  He is a talented photographer and I think the use of black and white is most effective. 
There have been some highs and lows over the past week or so.  We thoroughly enjoyed our trip to North Norfolk to stay with family over the bank holiday weekend but were not so keen on the five hour journey back in torrential rain!
We had to say to a much loved pet last Thursday - Dodger.  He had got very thin and weak but was purring until the end.  17 is a good innings for a cat I'm told and we still have his brother who is in fine form and I'm getting lots of cuddles.
Wednesday saw me in Southampton meeting up with my ex room mate from my nurse training days and another of our housemates from our days in Oxford.  Felix now lives in the States but is working as a nurse on the cruise liner the Ruby Princess which hit port that day.  The years just fell away :-) 

 Read more: http://us4.campaign-archive1.com/?u=1f0fb2b9eada51a6fa54509ba&id=41890ee7a5&e=2a0fc40be9

 Also:
Education: TRIGGER POINTS 
Video of the week: The Shoulder Bridge
Success Story: Caroline Bell
<><><><><><><><><><><><><><><><><><><><><><><><>


GMI Daily Newsletter: 8/29/14

GMI Weekly 9/01/14

GMI Daily Newsletter: 9/01/14

GMI Daily Newsletter: 9/02/14

GMI Daily Newsletter: 9/03/14

GMI Daily Newsletter: 9/04/14

<><><><><><><><><><><><><><><><><><><><><><><><>

On Monday I attended an ophthalmology appointment at Horsham Hospital.  That's 3 eye checks in 3 weeks!  All concurred that all is well, that the good eye is still good and there is a very low risk of the cancer metastasizing.  So I am happy about that.

Fondest wishes to all
Stella

<><><><><><><><><><><><><><><><><><><><><><><><>


<><><><><><><><><><><><><><><><><><><><><><><><>

N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. 
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

Posted by No comments:

FMS eNews 30/08/14

The Sutton Fibromyalgia Pop In Club are holding a stall at Asda, Sutton on 14th September, with challenges!  Any other plans for Fibroyalgia Awareness week besides  this and Horsham's which I outlined last week?  Let me know.
<><><><><><><><><><><><><><><><><><><><><><><><>

WORDz for the WEEK

 183.  Before giving a piece of your mind make sure you have enough to spare.
<><><><><><><><><><><><><><><><><><><><><><><><>


 From  Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome
The suicide of Robin Williams has thrown a spotlight on not only the tragedy of suicide, but depression and chronic illness, as well. See what we need to learn, and get resources for helping you and your loved ones identify the signs of a serious problem.
That's below.
Also this week, a look at being a parent when these illnesses sap your ability to ... well, do much of anything. Plus, remember those format changes I've talked about? They're about to become a reality for this page, so I've include the guide to them again to refresh your memory. I know how confusing it can be when something no longer looks familiar!
Down in Featured Articles, I've focused on things that can make your life better, bit by bit, because it's the sum total of the steps we take that define our journey.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/3053f25b920001827c0031a9.htm
<><><><><><><><><><><><><><><><><><><><><><><><>


 The ‘Insulted Midbrain’ in Chronic Fatigue Syndrome 
Recently Dr. Lucinda Bateman proposed that neuroinflammation in the middle part of the brain could explain many, if not all, of the symptoms found in Chronic Fatigue Syndrome. With that intriguing hypothesis in mind we take a look back at a fascinating MRI study by Dr. Leighton Barnden of the Department of Nuclear Medicine, The Queen Elizabeth Hospital, Adelaide, that came to a similar conclusion two years ago.

 http://www.cortjohnson.org/blog/2014/08/22/insulted-midbrain-chronic-fatigue-syndrome-glial-cells/
<><><><><><><>

From Mono To Giardia To Orthostatic Intolerance to … Chronic Fatigue Syndrome and Dr. Cheney: the First Visit 

 My ME/CFS History
1989 – The First Flu-like Illness
I was always a high energy burn the candle at both ends type-A person. In my early twenties (1989) I came down with a flu-like illness that did not go away. I had gone from a person who would play sports 4-6 hours a day, to one who would get worn out walking around the block. The doctors said I had mono or Epstein-Barr Virus (EBV), but the condition did not resolve.

 Read more: http://www.cortjohnson.org/blog/2014/05/22/mono-giardia-orthostatic-intolerance-chronic-fatigue-syndrome-visit-dr-cheney-1/
<><><><><><><>

The Cheney Chronicles #2: His Protocol For Chronic Fatigue Syndrome 
I have a confession to make -  I am treating myself.
I just finished listening/reading Dr. Horowitz’s book, “Why Can’t I Get Better? Solving the Mystery of Lyme and Chronic Disease” in which he discusses MSIDS – Multiple Systemic Infectious Disease Syndrome.  I learned from that book that we all deserve a doctor that tries to diagnose our health problems and who wants to reduce his patients suffering.  I learned some various other things from his book that could also be useful, especially if you suspect you have Lyme disease.
My current host of doctors include Dr. Rey, who is a member of Dr. Klimas’ clinic at Nova Southeastern University, and Dr. Paul Cheney. I feel they are very narrowly focused. Therefore, I am trying to treat myself making use of each of their different perspectives in the hopes that the combination of treatments will prove to be the catalyst that reduces and preferably eliminates my relentless fatigue.

 Read more: http://www.cortjohnson.org/blog/2014/08/25/cheney-chronicles-protocol-chronic-fatigue-syndrome/
<><><><><><><><><><><><><><><><><><><><><><><><>


 FM HealthWatch
Where Fibromyalgia and Chronic Fatigue Syndrome Part Ways (and Where They Don't) 

 Fibromyalgia and ME/CFS have many similarities but they also have some distinct differences. Learn what the research teaches us about where they shake hands and where they go their separate ways.

 Read More » 

 And other articles: http://www.prohealth.com/em/EM082714F/index.cfm?slvor=12005.1165677.0.1.0.110434
<><><><><><><><><><><><><><><><><><><><><><><><>

What You Should Know About Fibro 
Pain, tenderness, and fatigue are just a few of its possible symptoms. Find out how your brain and nerves may play a role.
Watch Video › 

    • With Exercise, Take It Slowly
  • Tips to Find a Fibro Specialist
  • Why Gut Bacteria Matter

http://view.messages.webmd.com/?j=fec8107577630478&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff6e157075&ju=fe9313717c650c7d77&r=0
<><><><><><><>

 Do You Have Insomnia? 
How do you tell if you're simply having a few rough nights, or if you have a bigger sleep problem? Find out.
Read Article ›

   • Natural Sleep Aids
  • What to Do After a Bad Night's Sleep
  • 11 Tips to Help You Sleep Better Tonight  
 
 http://view.messages.webmd.com/?j=febb107570600d74&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff6b167077&ju=fe9313727461077f7d&r=0
<><><><><><><><><><><><><><><><><><><><><><><><>


 How many marbles do YOU have? 
An easy fun way for children to understand the physical limitations of someone with CFIDS and Fibromyalgia using marbles and a jar.
I have written a children's book to help them understand the physical limitations of someone with Chronic Fatigue Syndrome and Fibromyalgia.. I've written a fun story but give a practical fun analogy that anyone can use.   The cool thing is the analogy would work well for other chronic illnesses such as rheumatoid arthritis, pulomary disease and other physically limiting conditions.  I plan on using Xlibris which is listed as one of the top 10 self publishing companies.. I have a contract ready and waiting and all I need are the funds to proceed with the publishing.. The publishing package includes illustration, marketing, registering the book with the federal government, obtaining a Unique Identifier number.  This book is necessary and will help children and families with CFS and Fibromyalgia.  I have already had friends who have CFS and or Fibro read it to their children and many of them have already assembled the jar and marbles.  It's so much fun for the kids and the adults..

https://www.kickstarter.com/projects/821169266/how-many-marbles-do-you-have
<><><><><><><><><><><><><><><><><><><><><><><><>

 <><><><><><>

 <><><><><><>
FM Joe's Election Campaign
Joe Neilson, Independent Parliamentaary candidate for Brighton Kemptown visited the newly opened Brighton TV Studios.  He met a girl working there who has had ME since she was seven.
Photo 1. 
Photo 2. 

 Joe has had an article published in The Fibromyalgia Magazine.
Page from magazine. 
Article about Joe.
<><><><><><><><><><><><><><><><><><><><><><><><>


 List of FMSSES Trustees & Group Leaders

 If you are looking for a FM Support group in SE England, look here:

 https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FMSSES%20_Contacts_14.08.pdf
<><><><><><><><><><><><><><><><><><><><><><><><>


 A personal  note from Vicky
It wasn't meant to be!

 For those who haven't  seen me in the past week you'll know that I was unsuccessful in my bid to take part in the next series of 'The Island'.  Many of you thought I was crazy to even contemplate it and maybe I was.  It was though an interesting experience to go through the selection for a reality TV show.  Lots of us there, were interested in seeing how far we could push ourselves but of course the television company had  another agenda.  They want a diverse range of people, the more extreme the better judging from the people from my group that went through to the next round. I enjoyed the last series and will certainly watch the next series with extra interest.

 Read more:- http://us4.campaign-archive1.com/?u=1f0fb2b9eada51a6fa54509ba&id=3d68378090&e=2a0fc40be9
Also included:
Education: How to be happy.
Video of the week: The Diamond Press
Success Story: Doreen Coughlin
<><><><><><><><><><><><><><><><><><><><><><><><>


GMI Daily Newsletter: 8/22/14

GMI Daily Newsletter: 8/23/14

GMI Daily Newsletter: 8/24/14

GMI Daily Newsletter: 8/25/14 

GMI Daily Newsletter: 8/26/14

GMI Daily Newsletter: 8/27/14

GMI Daily Newsletter: 8/28/14

<><><><><><><><><><><><><><><><><><><><><><><><>

 Yesterday I returned to St Barts for a review on my eye situation.
Stella
<><><><><><><><><><><><><><><><><><><><><><><><>


<><><><><><><><><><><><><><><><><><><><><><><><>

N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

Posted by No comments:
Subscribe to: Posts (Atom)