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FMS eNews 04/01/14



A New Year has dawned.  Here's hoping it will be a GOOD one, that we will all feel BETTER, and that research will discover a cure which would be BEST for everyone.
I have given the page a slightly new look for the new year.

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WORDz for the WEEK

149.  Ignoring your problems only means you are postponing the start of its "solution process".

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New Year's Resolutions

Have you made any new year resolutions?  Here's a few you may consider, for your own good and for the benefit of other FM fighters:-

1.  Join a support group. 


These can be found through FMA UK, http://fmauk.org/contactsmenu/supportgroups 
gives regional co-ordinators to contact; UK Fibromyalgia lists some groups, 
http://ukfibromyalgia.com/fm-support-groups/fm-support-groups.html 
Mutual benefit and support is vital.  Give YOUR suport to a group near you.

2.  Help to educate your doctor.

3.  Write to your MP. 
See excerpt from FMSSAS Newsletter.



4.  Raise money for research.  

http://follypogsfibro.org/  Email info@fibrofollypogs.org for further information on how to donate.

5.  Educate and equip yourself.

Knowledge is power!  FMS eNews guides you to where information can be found. 
See also previous issues from the archive menu on the right.


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Thirteen Things NOT To Do In 2014
Dr. Stephen Grinstead
 This will be the year you will transform your health and wellness goals into the reality you long for…so get ready to stop suffering now! 
In order to support you as you embark into 2014, we have an idea that will help keep you focused and on track. 
Just so you know, there was an article in Forbes magazine (check it out) from January 1st, 2013, which stated only 8% of people achieve their resolutions each year. This is a rather alarming figure, because all of us enter the year with the right intent, but somehow lose momentum, forget what we are looking to achieve, and eventually give up. 
We have an idea, and believe this is exactly what we all need to learn in order to be part of the 8%. We’re calling this the STOP DOING LIST. These are time drains, diversions, and distractions that take you off track and leave you feeling  unfulfilled. 
We have assembled a list of 13 things NOT to do in 2014, and are confident this is what will support you and your growth this year. 


(This s a 'LinkedIn' members only page, so you may not get direct access to this. Why not join?)

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Adrienne Dellwo
From Adrienne Dellwo

Is your illness as well managed as it could be? For most of us, it isn't. Adding something new to your regimen may help, but it's hard to know where you start. Explore the information on treatments below and find out what's available that could be just what you need.
Also, see the updated 2013 Drug Outlook for what's coming down the pipeline.
Take care of yourself, and Happy New Year!


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A Drink to Your Good Health by Purple Lady

'Purple Lady', Simone
I have previously written about the first study to examine the association between alcohol consumption, symptom severity, and quality of life of individuals with FM. 103. drug comboTreatment of FM is challenging because the drug therapies currently available are expensive and associated with numerous undesirable (understatement) side effects and addiction or tolerance issues. Despite undergoing drug treatment, patients are often left with unrelieved pain, restricted mobility, and reduced physical function.


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Understanding the Side Effects of Sleeping Pills

Between a third and half of all Americans have insomnia and complain of poor sleep. Perhaps you're one of them. If so, you may be considering taking a sleeping pill.
A sleeping pill may be effective at ending your sleep problems short-term. But it's important to make sure you understand everything you need to know about sleeping pills. That includes knowing about sleeping pill side effects. When you do, you can avoid misusing these sedatives.


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Take a Positive Step Towards Better Health in 2014

Welcome to the Earth Balance Tai Chi Newsletter, bringing you up to date info on Tai Chi, Qi Gong and Meditation courses, events and news in Sussex.


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Tramadol May Become Controlled Substance; Not as Safe as Once Believed

Are you a tramadol user? Many arthritis patients are prescribed tramadol to help control their pain. Tramadol was first marketed in the U.S. in 1995. It was promoted as the safer, non-narcotic, prescription pain reliever -- and most notably -- with less potential for abuse or addiction.
Well, guess what? An article from MedPageToday and the Milwaukee Journal Sentinel has disclosed more of the backstory that surrounds tramadol. According to the report, recent research shows that tramadol has much greater abuse potential and potential for overdose than what was thought to be the case when it first came on the market.


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Life With Arthritis Can Be Better in the New Year
Small Improvements Yield Big Results

Many people make New Year's resolutions. We often don't hear about the success or failure of the resolutions, but effort is made, at least initially. For people with arthritis, it's a bit more daunting to think of resolutions. Arthritis makes life tough enough, without adding that stressful dimension we call "New Year's Resolutions."


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Benefit Sanctions - Independent Inquiry

Sign the petition

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Latest News

The latest news on fibromyalgia syndrome and chronic fatigue syndrome is posted below in support of Fibromyalgia Network’s mission to educate patients and the media with ad-free reporting.


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Fibromyalgia News

The latest Fibromyalgia News articles published daily. Includes news on the chronic condition characterized by widespread muscle, tendon and ligament pain, extreme sensitivity to touch and fatigue. The condition is most prevalent amongst women between 35 and 60 years of age although it also affects men and other age groups.


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What You’ll Find…

Here you’ll find a selection of the latest news in the M.E./ Chronic Fatigue Syndrome and Fibromyalgia global community. 
Not only that, but you can also check out what you can do in terms of activism.
This is also the place to come, to find out if there’s anything new going on at Sleepydust – this is where we make all our announcements first.


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Looking Back and Looking Forward: Health Rising Begins New Era in 2014 

About a year ago Health Rising rose out of the ashes (:)) and began.  Two hundred and twenty blogs and over 200,000 visitors and 720,000 pageviews later, we can say it’s a pretty darn good year. Traffic has steadily risen over time and we expect that to continue. 2014 ME/CFS Recovery Stories – Early next year we’ll begin a series of blogs on ME/CFS recovery stories as we dive into the over 100 recovery stories we’ve gathered over the past two years. Blogs were our focus last year. This year programs are going to be a focus. Programs The ‘Ask the Experts’ section will debut next year 


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Master Newsletter, Dec. 27th, 2013

Daily Newsletter, Dec. 30th, 2013

Daily Newsletter, Jan. 1st, 2013

Become a Member (Jan 2nd)

Daily Newsletter, Jan. 2nd, 2013

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I hope this is plenty for you to mark, learn and inwardly digest.  
Stella
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N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

Posted by

FMS eNews 28/12/13

Hello
Thank you to those of you who sent me good wishes through cards, ecards and emails for Christmas as well as throughout the trauma of my eye problem.  I really do appreciate your concern as well as your kind words about FMS eNews.
This is a minimal issue, as predicted, but enough to be going on with for now!
There are only three more days left of this year!  A new year dawns on Wednesday.  I sincerly hope that 2014 will be a good one for all of us.
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WORDz for the WEEK

 148.  May you have enough happiness to make you sweet, enough trials to make you strong, enough sorrow to keep you human, enough hope to make you happy.
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From Adrienne Dellwo 1
Adrienne Dellwo
My nose has been to the grindstone so much this month, it should be a tiny little nub by now. I'm beat! How about you?
See how you can get through what remains of the Christmas season without making symptoms too much worse. That's below.
Also this week, what ME/CFS symptoms contribute most to sexual dysfunction, and new evidence about muscle fatigue in fibromyalgia - it doesn't come from where you'd expect.
Down in Featured Articles, you'll find some posts that can help you navigate the holiday season a little better.
Take care of yourself, and have a Merry Christmas!

 http://specials.about.com/service/newsletters/chronicfatigue/3052af5c050001bba60025e7.htm

 From Adrienne Dellwo 2

 Welcome to the first annual National Say "No" Day for FMS & ME/CFS! See why I've declared this special holiday for us, below.
Also this week, a look back at the top articles from the past year, and your chance to tell me what you'd like to see in 2014!
Down in Featured Articles, you'll find some great information on supplements.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/3052b35fc100bf25730025e9.htm
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Don't Drink Alcohol Before Bed

 While alcohol may help you fall asleep faster, it deprives you of the quality sleep you really need.

 Watch Video › http://www.webmd.com/sleep-disorders/video/alcohol-sleep?ecd=wnl_slw_121913&ctr=wnl-slw-121913_ld-stry&mb=
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 New studies Find Causes of Fibromyalgia

 Two new studies on fibromyalgia focus the problem on the thyroid, pituitary and hypothalamus, and suggest new avenues of relief for sufferers.
Research from the Fibromyalgia Research Foundation reveals deficient thyroid hormone regulation (DTHR) as an underlying cause of Fibromyalgia (FM). Poor diet, poor physical fitness and metabolism slowing drugs are primary contributors to symptoms as do additional hormonal imbalances of cortisol, estrogen and progesterone.
Another study, by Dr. John Lowe, Diplomat of the American Academy of Pain Management and Director of Research at the Fibromyalgia Research Foundation in the UK claims “indisputable proof” that the primary cause of fibromyalgia (FM) are with the pituitary gland or the hypothalamus.

 Read more: http://communities.washingtontimes.com/neighborhood/steps-authentic-happiness-positive-psychology/2013/nov/11/fibromyalgia-indisputable-proof-claims-uk-research/#ixzz2oQpfjcfB
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Daily Newsletter, Dec. 25th, 2013

Daily Newsletter, Dec. 26th, 2013
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So, here's wishing you and yours a very happy and largely pain-free or at least low-pain New Year
Stella
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N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com These ceased at the end of November 2012 when I resigned as a trustee. This blog commenced on 8th December 2012.

Posted by

FMS eNews 21/12/13

Greetings to all
Only four days until Christmas.  I have tried to keep information to a minimum this week as I did not want to overwhelm you at this busy time of the year.  If you do happen to have some spare time you can catch up on previous week's items that you may have missed.  Today's WORDz are particularly appropriate, but purely by co-incidence.
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WORDz for the WEEK

 147.  Slow down and enjoy life.  It's not only the scenery you miss by going too fast -- you also miss the sense of where you are going and why.
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 Benefit Sanctions - Independent Inquiry

 Responsible department: Department for Work and Pensions
Due to the draconian policies of this government in its Social Security reforms and the clear pressure placed on DWP/Job Centre staff, the number of claimants being subjected to benefit sanctions has increased by hundreds of thousands per year.
Benefit sanctions can last from 4 weeks to 3 years causing immense distress to benefit claimants, suicide, homelessness, poverty, hunger and increased use of food banks.

 Sign the petition
http://epetitions.direct.gov.uk/petitions/58217
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Men With Fibromyalgia

 If you are a man suffering from fibromyalgia, you may be having trouble dealing with your illness. This is because fibromyalgia syndrome is typically thought of as a woman's disease, and men with the illness are often overlooked. Men sometimes don't receive the same fibromyalgia treatment or emotional support that women do, and many men may even have trouble getting diagnosed properly. If you are a man dealing with the rigors of fibromyalgia,it is important know that you are not alone.

 http://www.fibromyalgia-symptoms.org/fibromyalgia_relieve.html
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 From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome
Adrienne Dellwo
Do you expect too much of yourself sometimes? Learn how to accept the thing you cannot change - your illness-imposed limitations - and how it can make your life and your health better. That's below.
Also this week, a new look at celiac disease in a particular group of people with fibromyalgia, and help dealing with stress. We could all use some of that this time of year, couldn't we?
Down in Featured Articles, get information about some of the treatments available to us. On the right, you'll find some help for getting through the holiday season.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/3052a62185000109550025e6.htm
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 There is now a FMS Clinic in Harley Street run by Dr Chris Jenner. 

 See his FM review here
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Dr_Jenner_FM_Review_13.11.pdf

 and his price list here
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Dr_Jenner_FM_Clinic_prices_13.12.04.pdf
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 Big Antiviral Trial Could Usher in New Treatment Era for Fibromyalgia - A New Approach to Fibromyalgia
So it’s going to be
 Fibromyalgia that
 gets the really
 big antiviral trial
Infections are a common trigger for fibromyalgia (FM), and fibromyalgia patients are experience many ‘sickness behavior’ symptoms, but we haven’t usually associated FM with viruses or immune system problems.
That’s been changing  recently. A immune biomarker has been proposed. Small fiber neuropathy - possibly caused by immune dysregulation – has been found. Dr. Dantini has been treating FM with antivirals for years.  The immune system’s starting to get some respect in FM.

 See more at: http://simmaronresearch.com/2013/12/big-antiviral-trial-era-fibromyalgia/#sthash.HXJZ3cHJ.dpuf
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 Best and Worst Ways to Cope With Stress
Jangled nerves got you down? There are right ways and wrong ways to get your stress under control.
Stress-busting solutions by Lauren A. Greene

 From natural disasters to overly demanding bosses, our world is filled with stressors. While some research has shown that short bursts of stress can be good for you, a new study out of Ohio State University and published in the journal Proceedings of the National Academy of Sciences found that dealing with persistent, long-term stress (like that from a toxic boss or from caring for an elderly parent) can actually change your genes, leading to an increase in inflammation that can bring on a variety of health issues.
Learning how to cope properly can go a long way for your everyday health. Here, the best and worst ways to de-stress right now.

 http://www.health.com/health/gallery/0,,20765943,00.html
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Daily Newsletter, Dec. 14th, 2013

Daily Newsletter, Dec. 15th, 2013

Daily Newsletter, Dec. 16th, 2013

Weekly Newsletter, Dec. 17th, 2013

Daily Newsletter, Dec. 18th, 2013

Daily Newsletter, Dec. 20th, 2013

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So, my friends, I hope you have an enjoyable, peaceful and blessed Christmas.  I may take a holiday from eNews next week, or at least do a minimal version.

 Best seasonal greetings
Stella
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N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com These ceased at the end of November 2012 when I resigned as a trustee. This blog commenced on 8th December 2012.

Posted by

FMS eNews 14/12/13


Although there is still one more Saturday before Christmas I'm sending my seasonal greetings to you all now as you may be too busy to read much next week! My family Newsletter sent to friends with email instead of posting cards can be found here.  https://dl.dropboxusercontent.com/u/17459523/Personal/Bernardi_letter_2013.pdf
Apologies if you have already received this.
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WORDz for the WEEK

 146.  A nightmare is a dream which was invaded by one of our fears.
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From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome
Adrienne Dellwo
 Few things in this world are harder than being a parent. When you spend much of your life sidelined by illness, it's hard to be the parent you envisioned. Join the discussion of what it takes to raise children when you can't get out of bed, below.
Also this week, researchers are asking whether alcohol could be an effective treatment for us, and a look at the common question about what treatment is best.
Down in Featured Articles, I've included information about some of our symptoms.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/30529ce7070001549b0025e4.htm
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Welcome to myhealthapps.net

 myhealthapps.net brings together the world’s favourite healthcare apps – tried and tested by people like you.

 http://www.myhealthapps.net/#
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 Neuropathology in Skin May Be Source of Fibromyalgia

 Biopsies of the palms of fibromyalgia patients have revealed an anatomic distinction that may explain the symptoms of fibromyalgia. Researchers have found an excess of sensory fibers innervating arteriole-venule shunts (AVS), structures involved in temperature regulation, in fibromyalgia patients.
“We’re asking about sensory innervation to vasculature: Could it underlie the pain, fatigue, poor sleep and cognitive issues characteristic of fibromyalgia?”

 http://www.painmedicinenews.com/ViewArticle.aspx?d=Science%2B%26%2BTechnology&d_id=354&i=November+2013&i_id=1010&a_id=24372
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 Study - Well-Being and Fibromyalgia - University of Liverpool

 Thank you for taking the time to read this information sheet.
You are being invited to take part in an online questionnaire study. Before you decide whether you wish to take part in the study or not, please read the following information carefully. The following information will explain why the research is being done, what you will be asked to do, and about confidentiality. Please take time to read the following information carefully and feel free to ask us if you would like more information or if there is anything that you do not understand. If you would like anymore information or have any questions please contact me or my supervisor using the contact details below. Please also feel free to discuss this with your friends, relatives or GP if you wish. To take part you must be 18 years or older, and a resident of the United Kingdom.
As a thank you for completing the questionnaire, you will be given the opportunity to enter a prize draw where you can win either 1 x 50 or 10 x £10 high street store vouchers.

 Learn more:- http://survey.liv.ac.uk/TakeSurvey.aspx?SurveyID=96KJ8l55
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 Top five holiday foods that promote cancer, diabetes, heart disease and premature death

 The holiday food rush is on across the USA, and for the next month, Americans will be stuffing thei
r faces with precisely the kind of disease-promoting foods that will cause them to scream, "Where's my free health care?" in early January.
The conventional media will give you all sorts of stories about which holiday foods are "high calorie" or have too many grams of fat, but it seems no one in the mainstream media is willing to tell you the rest of the story: How to avoid the cancer-causing chemicals, toxic heavy metals, GMOs and artificial ingredients found in holiday foods.

 Learn more: http://www.naturalnews.com/043180_holiday_foods_toxic_ingredients_avoid.html
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The Benefits of a Good Night's Sleep
(1 of 20 tips) Ban Blue Light in the Bedroom

 Insomnia feeds on the minor details of modern life, like the soft blue glow from a cell phone, PDA, or digital clock resting on your bedside table. The short waves of blue light may interfere with sleep.
Tip: Turn off TVs, computers, and other blue light producers an hour before sleep. Cover any blue displays you can't shut off.

 http://www.webmd.com/sleep-disorders/sleep-benefits-10/slideshow-sleep-tips?ecd=wnl_fib_121013&ctr=wnl-fib-121013_ld-stry&mb=
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Tai Chi & QiGong - Earh Balance
Join us at Faygate Village Hall, Saturday mornings 10.30am -1130am

 This class is suitable for any level of student wishing to practice their Tai Chi form or Qigong set. The class is being provided for students as an opportunity to use a large indoor space that is toasty warm and dry at the weekend. There will be minimal instructor involvement and no formal teaching. On sunnier days the venue is set in pretty woodland and a large playing field which we can also use. Bring tea bags and a smile!
Cost: No formal cost, hall hire to be divided between students attending on the day
Location: Faygate Village Hall, Park Road, Faygate, Near Horsham, RH12 4SG

 http://earthbalance-taichi.com/2013/12/self-led-practice-class/
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Your Beliefs Affect Everything, Including Your Health

 https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Forget_Fibro-13.12.14.pdf
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 FibroAction e-Newsletter - Winter 2013
IN THIS ISSUE

        Two Key Members join the FibroAction Team .......
Liverpool University Research Study.......
           Join us at Virgin Money Giving.................
University of Surrey Fibro & Pregnancy Study............
      Merry Christmas from FibroAction..............

 https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FibroAction_News_Winter_2013.pdf
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Fight Fibromyalgia Symptoms With A Healthy Diet

Symptoms vary between patients and mimic those of other conditions, making diagnosis especially difficult. In addition, there is no one specific treatment used for the 5 million Americans with fibromyalgia, reports the University of Maryland Medical Center.
 Instead, patients may benefit from a combination of education, exercise, medication and lifestyle changes. Creating an awareness of nutrition and healthy living can also help manage the condition, and several dietary guidelines may be especially helpful, say the experts.


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 Daily Newsletter, Dec. 8th, 2013

Daily Newsletter, Dec. 10th, 2013

Daily Newsletter, Dec. 12th, 2013

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So I wish you well in yor final preparations for Christmas.  Don't work too hard.
Best of wishes for this Holy Season.
Stella
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N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com These ceased at the end of November 2012 when I resigned as a trustee. This blog commenced on 8th December 2012.

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