Hello
Next week I will be in hospital for my operation. I regret that this means I will be unavailable to produce an FMS eNews. I hope it will not be too long before normal service is resumed.
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WORDz for the WEEK
139. Some people spend their lives for a purpose; the rest spend it looking for one. (or not!!!)
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From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome
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| Adrienne Dellwo |
With the launch of the Affordable Care Act (a.k.a., Obamacare) this week, you may be wondering what it means for you, and how to navigate the new system. You'll find some help, below. (USA only)
Also this week, Michael J. Fox is back on prime-time TV, Parkinson's symptoms and all! See what that could mean for us.
Plus, get a look at what the true role of inflammation in fibromyalgia might be, based on research from the past couple of years.
Down in Featured Articles, you'll find some content specifically for this time of year.
Take care of yourself!
http://specials.about.com/service/newsletters/chronicfatigue/30524c504804f5c9860025d4.htm
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Sensory Overload: Study Suggests Brains in Fibromyalgia Are Being Pummeled With Too Much Information
It’s a Jungle Out There
The key to survival in the animal world is to be able to detect threats in the environment and react appropriately. From the simplest sea creature dependent on temperature or saline gradients for survival to wildebeest on the savannah on the lookout for predatory lions – knowledge is god and fast and efficient processing of sensory information can make the difference between life and death.
Read more:
http://www.cortjohnson.org/blog/2013/10/03/sensory-overload-study-suggests-brains-fibromyalgia-pummeled-much-information/
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Damaged Neuroprotective Process Spells Pain for Fibromyalgia – Suggests Small Fiber Neuropathy is Present
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A key neuroprotective
process that should
kick in when your
muscles are in pain
appears to be
damaged in fibromyalgia |
From stiff muscles to painful trigger points to problems with exercise, the muscles can be a problem in fibromyalgia. It turns out that muscles have an interesting way of relaxing when they’re in pain. Every time you contract a painful muscle, your nervous system should take a little break, give your muscles a little break, and reduce your pain.
Rev Bras Reumatol. 2013 Jun;53(3):288-295.Importance of cutaneous silent period in fibromyalgia and its relationship with disease characteristics, psychological disorders and quality of life of patients. Umay E, Ulas U, Unlu E, Akgun H, Cakci A, Odabasi Z. neurons
These researchers looked at a curious phenomenon called the ‘cutaneous spinal period’ (CSP) which signifies a period during which the signals from very small sensory nerves to the brain get inhibited. Since these sensory nerves (small nerve fibers) carry pain signals to the brain, too much sensory nerve activity is going to leave you in pain.
Read more:
http://www.cortjohnson.org/blog/2013/10/06/damaged-neuroprotective-process-pain-fibromyalgia-small-fiber-neuropath/
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An Independent Researcher's Investigation Of Nutritional Supplements
Here is the main conclusion.
To get to the truth about nutritional supplements, above all...
Trust facts, not authorities.
After all, it was none other than Albert Einstein, PhD, (1879–1955) who warned:
“Unthinking respect for authority is the greatest enemy of truth.”
Because it is not uncommon, as Einstein was well aware of, for official authorities and acclaimed experts to omit, ignore, or even suppress facts (sound scientific evidence).
http://www.supplements-and-health.com/
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Physical Side Effects of Oversleeping
When it comes to sleep, can you have too much of a good thing? It's true a good night's sleep is essential for health. But oversleeping has been linked to a host of medical problems, including diabetes, heart disease, and increased risk of death.
Researchers are careful to note, however, that two other factors -- depression and low socioeconomic status -- are strongly associated with oversleeping. Those two factors may be the reason for the observed negative health effects. For example, people of lower socioeconomic status may have less access to health care and therefore more undiagnosed illnesses, such as heart disease, which, in turn, may cause oversleeping.
http://www.webmd.com/sleep-disorders/guide/physical-side-effects-oversleeping?ecd=wnl_slw_100613&ctr=wnl-slw-100613_ld-stry&mb=
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Slideshow: 10 Daily Habits to Reduce Chronic Pain
1. Get an Endorphin Boost: Exercise
It's a Catch-22: You're hurting, so you don't exercise; but without exercise, you may lose muscle tone and strength, making pain worse. Fortunately, even mild exercise releases endorphins, the feel-good brain chemicals that lift mood and block pain. Ask your doctor if aerobic, strengthening, or stretching exercises can give your body the boost -- and relief -- it needs.
See this and the other 9 here
http://www.webmd.com/pain-management/chronic-pain-11/slideshow-pain-tips?ecd=wnl_cbp_101013&ctr=wnl-cbp-101013_ld-stry&mb=
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9 Things You Can Do to Avoid Fibromyalgia Pain and Fatigue
- I'm having a hard time getting things done. What can I do?
- How can I exercise when I feel tired?
- Can massage reduce my fibromyalgia pain?
- What can I do for my muscle pain and stiffness?
- Can acupuncture help fibromyalgia pain?
- How can I get a good night's sleep?
- I'm overwhelmed by my fibromyalgia symptoms. What can I do?
- Are supplements a safe way to treat pain and help me sleep?
- How can I get some stress relief?
These questions are answered here:-
http://www.webmd.com/fibromyalgia/fibromyalgia-pain-10/slideshow-pain-fatigue?ecd=wnl_fib_100813&ctr=wnl-fib-100813_ld-stry&mb=
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Depressed? 12 Mental Tricks to Turn It Around
Medication can help depression. But a type of therapy called cognitive behavioral therapy (CBT)—which focuses on changing behavior, rather than talking about your childhood, for instance—can be an effective adjuvant to or even substitute for drugs. “It’s much more focused on what you seem to be doing and thinking that is keeping you depressed,” Simon Rego, PsyD, director of psychology training at Montefiore Medical Center in New York City. Some of its methods can be practiced at home, on yourself, with no special training. So here are some tips for breaking the cycle of negativity.
http://www.health.com/health/gallery/0,,20591880,00.html?xid=mindandmood10082013
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Stick It To Fibro Signs Campaign
So, one universally accepted emotion among all Fibromyalgia, and chronic illness patients for that matter is that our illnesses suck, they bite big time, they’re awful, we hate them, etc. So, we are implementing a brand new awareness campaign! It’s called the “Stick It To Fibro” signs campaign! So, I’ll explain a little bit more about the idea behind the campaign below.
http://fighterzblog.wordpress.com/2013/10/09/stick-it-to-fibro-signs-campaign/
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I CAN TOO DO IT!!! Watch me!
During a conversation with my Daughter the other day, we started out talking about shopping. She said she would rather go to the Mall with me but that she knew I couldn’t do that. I asked her “who said I can’t”. She said that it would hurt me too much to go. I agreed, but said that it was my decision not hers.
She saiwater waved like going to the Dells. Well, I went to the Dells with them and even tried the surfing. Did it hurt afterwards? HECK YA!, but it was my choice.
http://fighterzblog.wordpress.com/2013/10/05/i-can-too-do-it-watch-me/
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Fibro Fog - the Real Cause
The brief loss of memory or confusion, often referred to as fibro fog, can be incredibly frustrating and even distressing. I know I was very concerned that my usual alert mind appeared to be gone forever.
Memory is a precious thing and when you find you cannot even hold a conversation because you find it hard to concentrate, it is understandable that you may feel distressed about it.
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Fibromyalgia in Tonbridge
NEWSLETTER for October 2013 is now available.
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Tonbridge_FM_News_13.10.pdf
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Oct. 5th, 2013 Daily Newsletter
Oct. 6th, 2013 Daily Newsletter
Oct. 8th, 2013 Daily Newsletter
October 10th, 2013 Daily Newsletter
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I had a phone call from St Barts yesterday to tell me the result of last week's PET scan. The cancer has NOT spread, it is contained in the
eye. So I have much to be thankful for.
Best of everything
Stella
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N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources.
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at
www.fms-sas.co.uk/fmseNews.html and on a blog at
http://fmssas-enews.blogspot.com These ceased at the end of November 2012 when I resigned as a trustee.
This blog commenced on 8th December 2012.
